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Old 01-09-2008, 09:01 PM   #1
fullofbeans
Senior Member
 
Join Date: Jan 2007
Location: UK
Posts: 617
advice on lung mets please

I have the following symptoms:
-shorteness of breath for few days now
-Spitting yellow stuff for around 2.5 weeks
-Dry Cough which seems to have gotten better
-Broken voice which comes and goes
-I can feel my sternum
-No fever

At first I did not worry thought it was a bronchitis type of thing because I did not know that coughing ect was a potential symptoms of mets. But after I started to get breath shortness I started to look up on net and the above symptoms are really not a good sign and I am now officially completely freaked out .

The only thing that keep me sane is that my broken voice and cough seems to have either gotten better or varied and I would think that it is a good sign (it is, isn't it??????). But the shortness of breath is now making me really wonder.

I called my hospital today and the doc said that I should go and see my GP?????????????, got angry with her, but she said they were too busy at the mo and that I should take a course of antibiotic first to see if it resolves itself. So went to see the GP and he said I should get imaging (D'ha..) because there is no infection.

As anyone had a broken voice with lung mets and was it getting worse or could it come and go and same question about cough was is getting worse and worse or varying?
__________________

35 y/o
June 06: BC stage I
Grade 3; ER/PR neg
Her-2+++; lumpectomies

Aug 06: Stage IV
liver mets: 6 tumours
July 06 to Jan 07: 2*FEC+6*Taxotere; 3*TACE; LITT
March 07- Sept 07: Vaccination trial (phase 2, peptide based) at the UW (Seattle).
Herceptin since 2006
NED til Oct 09
Recurrence Oct 2009: to internal mammary gland since October 2009 missed on Oct and March 2010 scan.. palpable nodes in May 2010 when I realised..
Nov 2011:7 mets to lungs progressing fast failed hercp/tykerb/xeloda combo..

superior vena cava blocked: stent but face remains puffy

April 2012: Teresa Trial, randomised to TDM1
Nov 2012 progressing on TDM1
Dec 2012 blockage of my airways by tumours, obliteration of these blocking tumours breathing better but hoping for more- at mo too many tumours to count in the lungs and nodes.

Dec 2012 Starting new trial S-222611 phase 1b dual egfr her2+ inhibitor.



'Under no circumstances should you lose hope..' Dalai Lama
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