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Old 12-24-2007, 07:06 AM   #10
suzan w
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Join Date: Sep 2005
Location: Naples FL
Posts: 1,744
Hi Shadow! As you can see by my statistics, I had a small tumor and chose to treat it with everything available. My surgeon and oncologist (at Swedish in Seattle) both agreed. I did not have alot of time to make decisions, Swedish was my "second opinion", first doctors (doc who did the biopsy) recommended a much less agressive regimen. After a high oncotype score ( predicts percentage of distant recurrence) I opted for chemo. My Her2 status dictated herceptin for a year. I can't say what would have happened if I had gone with the less agressive treatment (lumpectomy, followed by radiation...no chemo, no herceptin, and arimidex for 5 years-ER+). I have absolutely no regrets about the route I took and am still taking! Let me know if you want to talk for real as we are "neighbors"!!
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Suzan W.
age 54 at diagnosis
5/05 suspicious mammogram-left breast
5/05 biopsy-invasive lobular carcinoma with LCIS,8mm tumor,stage 1 grade 2, ER+ PR+ Her2+++
6/14/05 bilateral mastectomy, node neg. all scans neg.
Oncotype DX-high risk
8/05-10/05 4 rounds A/C
10/05 -10/06 1 yr. herceptin
arimidex-5 years
2/14/08 started daily self administered injections..FORTEO for severe osteoporosis
7/28/09 BRCA 1 negative BRCA2 POSITIVE
8/17/09 prophylactic salpingo-oophorectomy
10/15/10 last FORTEOinjection
RECLAST infusion(ostoeporosis)
6/14/10 5 year cancerversary!
8/2010-18%increase in bone density!
no further treatments
Oncologist says, "Go do the Happy Dance"
I say,"What a long strange trip its been"
'One day at a time'
6-14-2015. 10 YEAR CANCERVERSARY!
7-16 to 9-16. Extensive (and expensive) dental work done to save teeth. Damage from osteoporosis and chemo and long term bisphosphonate use
6-14-16. 11 YEAR CANCERVERSARY!!
7-20-16 Prolia injection for severe osteoporosis
2 days later, massive hive outbreak. This led to an eventual dx of Chronic Ideopathic Urticaria, an auto-immune disease from HELL.
6-14-17 12 YEAR CANCERVERSARY!!
still suffering from CIU. 4 hospitilizations in the past year

as of today, 10-31-17 in remission from CIU and still, CANCER FREE!!!
6-14-18 13 YEAR CANCERVERSARY!! NED!!
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