Anyone else can't get QUININE for leg cramps??
Regarding QUININE SULPHATE.
I took my script to my local pharmacy only to get a sheet of paper explaining why I can't have it filled. You may know already, but in case not here is what it said:
"We can no longer fill your Quinine Sulphate prescription because the FDA has removed it as an easy approved drug in early 2007. Most pharmacies have exhausted their supplies on hand and can't get any more.
Qualaquin is now the only quinine product approved and it is specifically labeled "Not to be used for leg cramps: only for malaria."
Your physician may still legally prescribe the quinine brand, Qualaquin, if he/she has reviewed the new warning, and believes the benefits outweigh the risks to your health. Please keep in mind that most insurance companies will not pay for Qualaquin, unless it is written to treat and prevent malaria. It will cost over $4 dollars a capsule compared to pennies for the old generic product.
You may wish to talk to your physician about alternative prodicts, sich as prescription Requip, Gabapentin, Verapamil, Diltiazem; or over-the-counter products such as Magnesium, B Complex vitamins, or Hyland's Leg Cramps Formula - a homeopathic natural source of quinine - as possible alternative therapy."
I am trying the Hyland's and I am still getting the cramps.
What are the rest of you doing??
Yes, that was FOUR DOLLARS a pill. Is this a royal rip off or what!?
Tomorrow I start back up seeing my massage therapist as have found that really only regular massage therapy reduces the leg and hand cramps.
__________________
"When I hear music, I fear no danger. I am invulnerable. I see no foe. I am related to the earliest times, and to the latest." H.D. Thoreau
Live in the moment.
MY STORY SO FAR ~~~~
Found suspicious lump 9/2000
Lumpectomy, then node dissection and port placement
Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR -
Adriamycin 12 weekly, taxotere 4 rounds
36 rads - very little burning
3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum
Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED!
2003 & 2004 no active disease - 3 weekly Herceptin + Zometa
Jan 2005 two mets to brain - Gamma Knife on Jan 18
All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET
Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying
Continue as NED while on Herceptin & quarterly Zometa
Fall-2006 - off Zometa - watching one small brain spot (scar?)
2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava
2008 - Brain and body still NED! Port removed and scans in Dec.
Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011
STILL NED everywhere in Feb 2014 - on wing & prayer
7/14 - Started twice yearly Zometa for my bones
Jan. 2015 checkup still shows NED
2015 Neuropathy in feet - otherwise all OK - still NED.
Same news for 2016 and all of 2017.
Nov of 2017 - had small skin cancer removed from my face. Will have Zometa end of Jan. 2018.
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