Over the holiday, as part of the thread "Breast Cancer", there was discussion about the possibility of HER2 patients working together to help organize the collection of relevant information about us in a way that hopefully would speed up research developments:
http://her2support.org/vbulletin/sho...41183#poststop
I thought I would start a thread more specifically about that, because the topic is sort of lost in the discussion about my friend's death. Thanks, Lani, for opening the door to the possibility for us to work together as a group if there are others here who are willing.
As a side note, I also want to mention the following clinical trial, which is for those who have not yet had bc but is interesting in that it is attempting to form a similar kind of registry and gather information about people who are at high risk for bc:
http://www.clinicaltrials.gov/ct/gui...55503?order=13
Patient-centered HER2 bc project
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