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Old 10-28-2007, 11:08 PM   #1
tammymarie1971
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Join Date: Sep 2005
Location: British Columbia, Canada
Posts: 198
i need help

hi, i can hardly think straight enough to post this but here goes...On oct 3 I had treatment herceptin/vinorelbine..during treatment my shoulder hurt really bad...they sent me down for fluroscope(sp) and there was a crack in the line...my shoulder and neck hurt alot!!! anyway a week later they took the port out and didn't put a new one in because there was concern of infection...Well this past wed. I had treatment after a new port was put in in the am...they didn't close it up at all no stitches or staples just steri strips well I bled those off in no time..Thursdsay I felt pretty good..Friday and all weekend I have been achy in the shoulder, head, neck & hips..I also had a fever of 102 it has come down my hand on the port side is full of pins & needles and I know this is going to sound weird but my remaining breast feels full at times...I don't know what to make of all this..I also have no appetite to speak of. My poor husband has had to do everything this weekend...4 kids and we also have 9 4 week old pups...what a zoo around here...I don't know what I am asking I guess some insight would be good. Thank you.
Tammy
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Dx'd Dec'01 while 6mos preg. with #4. child (30yrsold)Mastectomy/AC chemo/radiation/ Recur:Mar'04 liver mets: 3 taxol/herceptin /liver resection/3 taxol/herceptin. Cured?
Recur: May'05 spine & Hip. New onc
treatment in Mexico Feb'06-Mar-06
back to Mexico June/July '06
Currently on herceptin/Zometa/Femara-recently added navelbine
Switched to arimidex Nov'06
ovaries removed June '07
ca15-3 in May'06 was 102
ca15-3 summer of '07 holding steady at 23!
ca15-3 slowly rising Dec & Jan 36, 38, 41 and Feb was 36
Feb '08 Liver, lung & Brain scan NED... bones are stable with even a couple spots gone. as compared with '06 scans
May '08 ca 15-3 is 55. Treatment is zometa, vinorelbine, herceptin and aromasin.
No signifcant changes.
Feb'09 Started Xeloda with herceptin..no more hormonals
Feb'09-June'09 tumor markers coming down again from 155 to 84
May'09 blood clots in lungs vena cava filter put in..Heparin shots daily for now.
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