One year on exactly..
I wanted to share with you my precious ladies (and Joe) this very special day to me. It is one year to the day since 6 tumours were found in my liver. I have had a scan recently and I am still a NED!!
As I am writing this I have tears in my eyes I feel very humble and grateful.
What a ride for sure, as you all know life has become very precious for us all and nothing is taken for granted anymore. In December I could hardly walk and now I go to gym at least 3 times a week and I have plenty of plans for the future and feel really strong, happy and very spiritually awaken. Thank you, thank you, thank you..
I wish to thank this site for being such a great source of inspiration and information. For example I asked my Onco to give me a Brain MRI which they say they will not do because they say that with Breast cancer there is no point because it cannot be treated and that I should wait for symptoms..I quoted Steph example who was still alive to tell the tale..
Belinda & Lani I have not forgotten about pushing for the potentially magic drug combination (Hercp/Tykerb, Gefitinib pertuzumab), I just needed some times off right now between the lovely travelling in the States and finding a new balance in life (back in UK full time 8Oct) and getting my broadband working!
Anyhow my vaccination is complete (blood work only this time) and I have my last trip next month and what a trip: I will go to San Diego for a week (not sure where yet) then Seattle then a mate is joining me and we will be visiting NYC and around..Thank you thank you thank you..
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35 y/o
June 06: BC stage I
Grade 3; ER/PR neg
Her-2+++; lumpectomies
Aug 06: Stage IV
liver mets: 6 tumours
July 06 to Jan 07: 2*FEC+6*Taxotere; 3*TACE; LITT
March 07- Sept 07: Vaccination trial (phase 2, peptide based) at the UW (Seattle).
Herceptin since 2006
NED til Oct 09
Recurrence Oct 2009: to internal mammary gland since October 2009 missed on Oct and March 2010 scan.. palpable nodes in May 2010 when I realised..
Nov 2011:7 mets to lungs progressing fast failed hercp/tykerb/xeloda combo..
superior vena cava blocked: stent but face remains puffy
April 2012: Teresa Trial, randomised to TDM1
Nov 2012 progressing on TDM1
Dec 2012 blockage of my airways by tumours, obliteration of these blocking tumours breathing better but hoping for more- at mo too many tumours to count in the lungs and nodes.
Dec 2012 Starting new trial S-222611 phase 1b dual egfr her2+ inhibitor.
'Under no circumstances should you lose hope..' Dalai Lama
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