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Osteonecrosis suggestions
Does anyone have access to the oral maxifacial journal for July there is refence to articles regarding ONJ. Sorry I haven't posted in a while but summer and vacations and too many kids. I have used all my dental insurance for the year, to try and get this crown on, and get rid of the left side gum sores. My teeth on the lower side are loose as well. I have used peridex, closis, biotene, 2 rounds antibiotics, coq10, vit c and kenalog/orabase gel. I have jaw pain that radiates up to my head, so then you worry about more mets, especially now I had to stop herceptin.
If anyone has any natural suggestions, rinses, vitamin combos etc, please help. I was able to maintain my weight on chemo, and thru the radiation, but this is kicking me!!!!!! I have lost around 10-15 pounds, which is worrying me. Has anyone gotten their inurance to pay for hyperbaric tx?
I appreciate all your posts and encougement to others!!!! Stay strong and faithful!!!
Darita
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dx 1/06 IDC 2cm 38 at dx
2/06 L mast nodes 3/9+ SNB neg ER-/Pr - her2 + Stg 4 liver/pelvis
3/06-9/06Taxol/Carbo/zometa/Herceptin
3/07 6 brain mets WBR down to c-2
4/07 osteonecrosis jaw
1/08 mri new 9mm lesion right lower side
2/08 gamma knife 1 lesion 11/08 regamma
10/09 latent rad necrosis to brain met,
1/20/10 crani: lesion necrosis w active cells continue her add tykerb
1/11 NED just Ingrown toenail! YEAH GOD
8/11 Tykerb, herceptin weekly, elevated her2 levels, negative scans
oct -march 11 new neuro deficits lower legs
3/12 2 spinal metsTykerb, Herceptin
04/12 4050cGY rads T 2-4 & T7-9
5/12 Brain,cervical lumbar clear/thoracic slight decrease
10/12 t 2-4 shrunk t-9 grew start Xeloda, 02/13 stop xeloda,5/13 on metformin, decadron, Tykerb, iv and IT herceptin 5/30/13 total #11 #2 of 80mg dose weekly.
9/13 100mg of IT her, IV hern, 750 mg tykerb, 3mg dec.
last Mri T--3 SHRUNK t7-9 shrunk no edema. Left shift in CBC bone marrow BX negative.
10/13 Ct has shown Double left ureters with stones/cysts in them, after 3 births and lots and U/S iit takes cancer to figure out you have 2 smaller ureters going into 1 kidney!
12/13 Mri brain no new lesions, cervical and lumbar arthritis.
Tspine lesion at T3 stable, T 7-9 GROWTH lots of pain
1/29/14 HIHO HIHO its off to Neuro surgery I go
Life is Good when you wake up in the morning and take a breath and know that God has given me another day.
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