Herceptin and ankle swelling

[Erin]

Hi Ladies,

Two months ago, right after my last TCH I developed some swelling in my ankles. Onc put me on lasik - on four days a week, off three days. After 4 days the swelling would be completely gone, but the minute I went off the lasik it would come back. We gave it 6 weeks, but no improvement, so now I am on lasik every other day. Swelling improves slightly after I take it, but comes back on my off days. Suspended herceptin for now.

Onc says he will repeat my echo next week, but says it is pretty clear that I am having some heart failure issues, from the Herceptin. I got 5 full months of herceptin in, and as my onc says, if I were in Finland, I would have only gotten 9 weeks. Nonetheless, as you all know, herceptin feels like a magic talisman to me and I am really bummed about stopping.

Here is the question - Have any of you had to suspend herceptin for cardic issues and were you able to go back on it once the cardic function improved?

Thanks for your help.