Husband Is Back From Dana Farber Cancer Institute
We're backkkkk!! Everything went well at DFCI except we found Neurological Surgeons here in 'Little Rhody' that read the MRI in a rather different light. I am thankful for DFCI and shall keep that an option for future treatment & clinical trials but I was a bit saddened, a little let down.
We were told that my husband had 5 spots in the brain, we thought we could do the gamma knife for these spots and at one point we were a candidate for the knife. I am so glad that we went for a second opinion to read that MRI. Of course before the knife you need others involved with reading the reports anyway, but I felt that we were a bit rushed there and that the only person looking at these reports was a doctor. Most doctors read and believe what they see in the report and do not see the many, many, many spots one has in his brain!! Please do not see me as unappreciative or ungrateful, for I am not. This is my favorite person's life we are talking about!!
This week alone we went to: Dana Farber, 3 doctors & 3 radiation appointments(have not even started it yet!), bloodwork, treatment...and I could go on!!
SUMMARY: He will be doing 15 days of Whole Brain Radiation along with Radiation to Pelvis. Then he will start on a chemo regime of Tykerb/Xeloda and remain on the Tamoxifen. Sounds so easy huh!!..So matter-of-factly!!
We also have a consult with a Nutritionist for him. He has remained healthy and eats well, always did. For some reason he is losing weight and we cannot stop it. He tells me that the gypsy from the Stephen King Novel "Thinner" has placed a curse on him!!! LOL. What am I gonna do with him??
Thank You All For Your Unconditional and Devotional Love & Support for us.......could not do it without ya!!!Waiting For A Miracle>>Believe51 & Her Knight in Shining Armor
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9/7/06Husband 50yrs=StageIV IBC/HER2+,BoneMets10/06TaxotereX10,'H'1X wk,Zometa,Tamoxifen4/12/07Last Tax5/18/07Pet=Rapid Cell Activity,No Organ Mets,Lytic Lesions,Degeneration,Some Bone Repair5/07ChemoFail6/01/07Pleural Thoracentisis=Effusions,NoMalignantCells6/19/07+7/2/07DFCI
6/25/07BrainMRI=BrainMets,Many<9mm7/10/07WBR/PelvisRad37.5Gx15&Nutritionist8/19/07T/X9/20/07BrainMRI=2<2mm10/6/07Pet=BoneProgression
10/24/07ChemoFail11/9/07A/Cx10,EndTam12/7/07Faslodex12/10/07Muga7512/13/07BlasticLesions1/7/08BrainMRI=Clear4/1/08Pet=BoneImprovement,
NoProgression,Stable4/7/08BrainPerfect5/16/08Last A/C8/26/08BrainMets=10(<9mm)9/10/08Gamma10/30/08Met=5mm12/19/08Gamma5mets5
12/22/08SpinalMets1/14/09SpinalRads2/17/09BrainMRI=NoNewMets4/20/09BoneScan5/14/09Ixempra6/1/09BrainMRI=NumerousMets6/24/09DFCIw/DrBurstein6/26/09Continue
Ixempra/Faslodex/Zometa~TM now lower7/17/09Stop Ixempra By Choice9/21/09HOSPICE10/16/09Earned His Deserved Wings And Halo=37 Month Fight w/Stage 4 IBC, Her2+++,My Hero!!
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