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Old 06-19-2007, 05:51 PM   #1
Chelee
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Join Date: Feb 2006
Location: Southern, CA
Posts: 2,511
Endrocrinologist & bisphosphonate?

I just had a 2nd opinion and one question I had was about my last DEXA scan results said osteopenia and it recomended I be put on a Bisphosphonate. I've asked my onc about this several times and she doesn't think its necessary. So the 2nd opinion onc said a bisphosphonate is usually given when you have Osteoporosis. I *thought* it was suppose to be started *before* it gets that bad?

When did your onc start you on a bisphosphonate and why? Did any of you start when your showed up to be osteopenic?

She also told me to see an Endrocrinologist & discuss this with him. Have any of you been referred to an Endrocrinologist for your bones?

Chelee
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DX: 12-20-05 - Stage IIIA, Her2/Neu, 3+++,Er & Pr weakly positive, 5 of 16 pos nodes.
Rt. MRM on 1-3-06 -- No Rads due to compromised lungs.
Chemo started 2-7-06 -- TCH - - Finished 6-12-06
Finished yr of wkly herceptin 3-19-07
3-15-07 Lt side prophylactic simple mastectomy. -- Ooph 4-05-07
9-21-09 PET/CT "Recurrence" to Rt. axllia, Rt. femur, ilium. Possible Sacrum & liver? Now stage IV.
9-28-09 Loading dose of Herceptin & started Zometa
9-29-09 Power Port Placement
10-24-09 Mass 6.4 x 4.7 cm on Rt. femur head.
11-19-09 RT. Femur surgery - Rod placed
12-7-09 Navelbine added to Herceptin/Zometa.
3-23-10 Ten days of rads to RT femur. Completed.
4-05-10 Quit Navelbine--Herceptin/Zometa alone.
5-4-10 Appt. with Dr. Slamon to see what is next? Waiting on FISH results from femur biopsy.
Results to FISH was unsuccessful--this happens less then 2% of the time.
7-7-10 Recurrence to RT axilla again. Back to UCLA for options.
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