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Old 06-13-2007, 09:19 AM   #17
Joy
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Join Date: Jul 2005
Location: Ft. Collins, Colorado
Posts: 546
I also think

You should appeal because your doctor recommended this drug for good reasons and efficacy is a big one. I would talk to the doc again and see how he can help with a letter of medical necessity backed with research. Also if you have a nurse advocate within your insurance company or can find one if they have a program, and many do, for this. Then you have like a case manager who can talk to real individuals like medical directors, etc. who can say that this treatment can be approved.

I'm not trying to be a bossy boots, Sheila, so forgive me. I just want people to get treatment with drugs that have been developed for the sake of TREATING people. You are a fesity gal and I know you'll do what YOU need to do and I know that you will do just fine.

Hair loss stinks, I've done it 3 times. the only good part is that it is so exciting to get fresh new hair. Have your sense of humor about it and cry if you need to and come to us to just kvetch about it.

best wishes and losts of love headed your way!
__________________
with love and gratitude,
joy

dx stage I 2/2000*er/pr+; her- per IHC*lumpectomy*4 rounds A/C*30 rads*tamoxifen*dx stage 4 5/2002*huge mets to liver*tiny mets to lungs*stopped tamoxifen*5/02 taxotere/xeloda*her 2 checked with FiSH-her2+++herceptin *2/03 stopped chemo femara w/herceptin*zolodex*04 switched to aromasin w/herceptin*05 high estrogen tx*11/05taxol/carbo*7/06 stopped chemo; megace/herceptin*9/06navelbine/herceptin*5/07tykerb/xeloda great response*4/08 progression in liver; ooph/ faslodex /herceptin
6/08 began Herceptin DM-1
9/08 progression
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