Help for coming off steriods (Decadron) with TCH

[kcherub]

Hi, there! I post a while back, and got some wonderful responses that really helped. You are all so wonderful, and I hope that all women with HER2+ BC can find us!

I started TCH on 5/25--it wasn't a picnic, but it was NOWHERE near as bad as I imagined! Day 1, 2, 3, and 4 were asymtomatic (just "foggy" feeling), but Day 5 was a nightmare. It was the first day without the steriods and I literally thought I was going crazy!!!

Did anyone experience this on the first day without steriods, and if so--how was it resolved on the next cycle? The nurse said they would dose me down next cycle (this Friday, 6/15), but I am still worried. I was having severe hallucinations and was scared for myself.

I was so sad to read about Sandy. I have read a lot of older posts on the site, and she was always so upbeat and supportive. Although I never "spoke" with her, I just cried and cried when I thought about the loss of the cute little woman with the impish grin and pink sweater! I am going to put this on her remembrance page as well.

Thanks so much!
Krista