Lu ann,
I was and have remained of the same opinion for myself: No WBR!
With my second dx of brain mets (six months after the first two were treated with SRS) there were 14 newbies scattered throughout my brain. In cerrebellum as well as one on my pon/brainstem.
I was lucky in that all were under 1cm and I remained nearly asymptomatic. My choice was for a series of focalized rad tx's. We treated in batches of 4 twice. Going after the largest, most potentially dangerous, first.
The final six were done with two CyberKnife tx a few days apart.
This was over the course of a year+! So, depending on the size of yours and locations, and nerve! you could do this as well.
Yes, I've now 'used up' my total rad amount, too, as it is cumulative... but, I have had miraculous luck with Xeloda/Temodar for my current 8 brain mets... nearing two yrs of that combination.
My first dx with brain mets was in Sept. '02. I had the support of my partner (in every appt I had) for my decisions. I think this helped get the treatment I wanted. For the most part, I was calm and clear as to my choices, so I didn't sound like a raving idiot! That may have helped, too.
If you still get 'no' for an answer and are ok with the wait, try for a third opinion...
Wishing you very good luck in pursuing the course of treatment YOU choose for yourself, with much hope of long lasting results.
hugs,
pattyz
|