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Old 04-10-2007, 04:54 PM   #1
IRENE FROM TAMPA
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Join Date: Oct 2005
Location: TAMPA, FL
Posts: 568
Smile Hopefully Share Some Encouragement

I just returned from seeing my onc. for results from my scan. Last time scanned was three months ago. I started the Tykerb/Xeloda trial in August of last year.

My blood work was good. My CEA is 2 and my 27-29 came down to 41(close to the normal range)

The smaller of the two tumors I had is not shown any longer and the bigger one is down to about 15 mm which I think is about 1.5 cm??

Nothing else showing anywhere else in my body. Needless to say, I am very pleased as I usually do not go past 7-8 months on any one drug.

I will be rescanned in June and see how it's going then.

I feel great except for of course the hand/foot thing which sometimes is worse then others. Small price to pay....

My onc told me today that he thinks that there are some trials going on combining Tykerb with Herceptin and also some other combo's which gives more options. This is good news also

This was good news for me today and hope this gives encouragement to those beginning on this combo. We never know just how long any of these drugs will work on us (with some luck a cure for some of us) but it gets us more time for something else to come out.

Good luck to all
__________________
Irene from Tampa
1996 - INFILT DUCTAL CAR.W/ LYMPH NODE INVOLVEMENT. ADRIA/CYTOXIN/5FU
1999 - RECURR. TO AUXILA AND 2 TUMORS IN LIVER
TREAT: STEM CELL REPLACEMENT/HERCEPTIN.
2002 - RECUR TO LIVER
TREAT: NAVELBINE, THEN GEMZAR, THEN XELODA.
2004 - TUMORS STILL IN LIVER
TREAT: RFA TO LIVER
STABLE UNTIL
2004 - TUMOR PROGRESSION IN LIVER.
TREAT: RESECT HALF OF LIVER.
2005 - RECURR TO LYMPH NODE OUTSIDE OF LIVER.
TREAT: TAXOL/CARPO/HERCEPTIN. FAILED ON
THIS TRIO. STARTED ON ABRAXANE.
2006 - PROGRESS WITH 2ND TUMOR GROWTH.
TREAT: AUG. BEGAN ON TYKERB/XELODA
TRIAL. CONSIDERED STABLE TO DATE.
2007 - TAKEN OFF OF TYKERB/XELODA TRIAL DUE TO
PROGRESS STARTING TYKERB/AVASTIN.
NOV 2007 - SCANS SHOW PROGRESS TUMOR GROWTH
IN ABDOM. AND TWO NEW TUMORS IN NECK AREA.
BEGAN HERCEPTIN/AVASTIN/TAXOTERE
Feb 08 - Ixempra/Xeloda
June 08 - Her/DM1 trial

"I WANT TO BE AN OUTRAGEOUS OLD WOMAN WHO NEVER GETS CALLED AN OLD LADY. I WANT TO GET SHARP EDGED & EARTH COLORED, TILL I FADE AWAY FROM PURE JOY."
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