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6 years and one day!!!
Wanted to share my anniversary with you hoping this gives some hope to those that may need it. Yesterday marked 6 years living with IBC! I think of these 6 years, this past year was the best. I have done traveling and lots of fun things and my quality of life is still very good. Yes, we are looking for a different treatment plan and hopefully, there will be those out there that will continue to work for a long time. I am saying a prayer for all of you on this board struggling to stay on top of this disease. It is a full time job being a patient advcate, doing research, being in tune with our body's signals and following heathy habits which is a struggle some days. Sending you all a big hug and blessings where ever you are in your journey. Also a big thank you for the support of this board. Sandy
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Dx. 03/01, Rt. IBC
AC/Taxatere
Rt. MRM-with graft Lt. simple
5 rads-skin mets
Herceptin, taxol, carboplatin (taxol seem to be the magic drug)
Navelbine & xeloda (did not work)
topical miltex for skin mets
Tykerb/xeloda
thoracentesis x 2 left lung fluid shows cancer cells
Port removal (4 years) with power port replacement
Doxil
Updated 05-07 Scans show no bone or organ involvement we shall see!
I shall not pass this way again. Any good I can do or any kindness that I can show let me not defer or neglect it for I shall not pass this way again.
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