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The bc patient has NO rights! I'm tossed out!
For the ones that have followed my nightmare with my cancer center...they are sending me an official notice to get out. Just because I *wanted* an oncologist to EXAM me is no reason to tell me to go else where. Everything was fine until I wanted to change onc that would actually answer my questions and exam me. Her own progress notes PROVES what I am saying is true! I have to deal with my stage III bc DX...and now worry about how I am going to get treated?
They have offered me to go else where as I have mentioned before but 98 miles round trip is too far. I was already disabled before bc. Plus once I am tossed out I LOSE ALL my doctors here. Which happens to be my onc, surgeon, GYN, pulmonary, Cardiologist, Neurologist, internist & primary doc of 22 yrs ALL because ONE onc doesn't like me now. So NOT only would I have to drive 98 miles round trip for my new onc...but for ALL new doctors out at this same place. I would be *living* on the road as I have so many appts its not funny. I am being punished for filing a grievance to switch onc. (they say they can't retaliate against you for a grievance...the heck they can't.) How can they get AWAY with NOT examing me & denying a 6 month mammo with my bc history?! What happened to the standard of care? Amazing! I'm so upset...all I do is cry. I can't do this anymore.
Its bad enough to live with this bc DX....but now my life is over because I am asking to much for my oncologist to exam me. I guess I can just go away and die...because there is no way I can drive 100 miles to 7 doctors. I don't know why this is happening to me? The power one doctor can have is amazing. I will repeat what I've said before...DON'T ever file a grievance or you WILL be sorry. There is no such thing as patients rights...nor anyone to help you when your treated like this. I wonder if this is HOW my onc would TREAT someone that had bc in HER family!
Chelee
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DX: 12-20-05 - Stage IIIA, Her2/Neu, 3+++,Er & Pr weakly positive, 5 of 16 pos nodes.
Rt. MRM on 1-3-06 -- No Rads due to compromised lungs.
Chemo started 2-7-06 -- TCH - - Finished 6-12-06
Finished yr of wkly herceptin 3-19-07
3-15-07 Lt side prophylactic simple mastectomy. -- Ooph 4-05-07
9-21-09 PET/CT "Recurrence" to Rt. axllia, Rt. femur, ilium. Possible Sacrum & liver? Now stage IV.
9-28-09 Loading dose of Herceptin & started Zometa
9-29-09 Power Port Placement
10-24-09 Mass 6.4 x 4.7 cm on Rt. femur head.
11-19-09 RT. Femur surgery - Rod placed
12-7-09 Navelbine added to Herceptin/Zometa.
3-23-10 Ten days of rads to RT femur. Completed.
4-05-10 Quit Navelbine--Herceptin/Zometa alone.
5-4-10 Appt. with Dr. Slamon to see what is next? Waiting on FISH results from femur biopsy.
Results to FISH was unsuccessful--this happens less then 2% of the time.
7-7-10 Recurrence to RT axilla again. Back to UCLA for options.
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