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Old 02-23-2007, 12:25 PM   #1
atdec05
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Join Date: May 2006
Posts: 144
Anyone in the PTEN/Herceptin trial?

I just got the preliminary results of a biopsy - so far I have a local recurrence near my mastectomy scar.

This appeared as a little pimple that sprouted up in my last month of Herceptin!

I've been reading that some women don't respond to Herceptin because of low levels of PTEN protein, and there are trials for women to take Herceptin with something that ups the PTEN levels.

Anyone doing this?

This may be premature because I have no hormonal results yet, but just trying to plan ahead.

Also will do a total body PET/CT MRI for the first time. What's that like? I'm bummed they can't use my port.

- Anna
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- Anna

Stage I - DX 9/2005
ER/PR-, HER2+, grade 3, DCIS, IDC multi-focal (1.05cm)
DD 4 A/C finished Jan 31, 2006
Herceptin weekly finished Jan 31, 2007
recurrence to chest wall on last month of Herceptin
Stage 3B - 3/15/07 - 2 carcinomas in dermal lymphatic
Rads finished 6/5/07
12x TH finished 9/10/07
12/07 - Clear scan!
3/08 - 4 month Melatonin trial
1/09 - osteoperosis -
start Alendronate
2/09 - 4-month Simivastin trial
3/13 - take drug holiday after 5 years of Alendronate
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