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In two minds about radiation...any idea?
Hi all,
In brief my BC and mets were treated together since the spread were simultaneous. When I was first diagnosed for BC only I was meant to have rads after I finished my chemo, and until recently I thought that is what was on the card.
I called my oncologist yesterday to ask when I would be starting since I am eager to finish in case i get taken in a trial I am applying for. Anyhow he said that nothing was now planned because they usually do not give rads to mets people because they control it with chemo.
So me thinking:
1-I am a NED and I like the idea of beleiving that I will stay in remission forever and therefore I should do the rads as planned. Just in the off chance that I do indeed stay off mets, imagine the irony of a local recurrence? not funny..
2-Well, lets face it rads is not fun, I am getting a better now from chemo and enjoying it no end. Rads can also have sides effect. If I was a scientific lets face it mets relapse is so much more likely, so why go though the agro..
I would like to hear your thought on this..
Love
Karina
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35 y/o
June 06: BC stage I
Grade 3; ER/PR neg
Her-2+++; lumpectomies
Aug 06: Stage IV
liver mets: 6 tumours
July 06 to Jan 07: 2*FEC+6*Taxotere; 3*TACE; LITT
March 07- Sept 07: Vaccination trial (phase 2, peptide based) at the UW (Seattle).
Herceptin since 2006
NED til Oct 09
Recurrence Oct 2009: to internal mammary gland since October 2009 missed on Oct and March 2010 scan.. palpable nodes in May 2010 when I realised..
Nov 2011:7 mets to lungs progressing fast failed hercp/tykerb/xeloda combo..
superior vena cava blocked: stent but face remains puffy
April 2012: Teresa Trial, randomised to TDM1
Nov 2012 progressing on TDM1
Dec 2012 blockage of my airways by tumours, obliteration of these blocking tumours breathing better but hoping for more- at mo too many tumours to count in the lungs and nodes.
Dec 2012 Starting new trial S-222611 phase 1b dual egfr her2+ inhibitor.
'Under no circumstances should you lose hope..' Dalai Lama
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