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just thinking...
I've been thinking about this for awhile and now I'm thinking I need to take some action. I've had this idea of going to one on the BIG cancer center treatment facilities in the US. I would, in my fantasy anyway, like to have a liver met biopsy. Have it tested for the things we can test for as the list is growing e.g. igfr, egfr, veg-f, er/pr/, her2, pten, etc. Then meet with a doc and say, "what would you do with me?".
My questions for you guys are these:
where? I have relatives on the East Coast (Dana Farber, MSKK, Mt. Sinai)
i live in Colorado so MD Anderson and UCLA aren't too far. I could probably stay with friends of a friend in Seattle for that center-what is the best place fo you think?
has anyone had experience in doing this and do you feel it made a difference for you vs. your regular oncologist?
I think my oncololgist rocks-I love her and she is tuned into breast cancer beautifully, but Colorado is pretty small-fry for studies and research as compared to the coasts or MD.
I have friends and family willing to help/accompany, etc.
You feedback is always so great and appreciated. I would LOVE your thoughts.
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with love and gratitude,
joy
dx stage I 2/2000*er/pr+; her- per IHC*lumpectomy*4 rounds A/C*30 rads*tamoxifen*dx stage 4 5/2002*huge mets to liver*tiny mets to lungs*stopped tamoxifen*5/02 taxotere/xeloda*her 2 checked with FiSH-her2+++herceptin *2/03 stopped chemo femara w/herceptin*zolodex*04 switched to aromasin w/herceptin*05 high estrogen tx*11/05taxol/carbo*7/06 stopped chemo; megace/herceptin*9/06navelbine/herceptin*5/07tykerb/xeloda great response*4/08 progression in liver; ooph/ faslodex /herceptin
6/08 began Herceptin DM-1
9/08 progression
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