Seeking advice for best friend's grandson

[Liz J.]

Hi all,

I am asking if anyone here has any experience with or knowledge of a brain malignancy known as Medulla Blastoma. My dearest and closest friend's 3 1/2 year old grandson was diagnosed with this last Thursday. They live in Port St. Lucie, Florida. The baby was operated on Saturday in Miami Children's Hospital. I don't know all of the details, but am trying to do anything I can to help them. Pat and I grew up together and have been like sisters since 9 years of age. When I was diagnosed with BC she flew up to New York faster than the plane. I know her daughter and son in law will be seeing an Onc. somewhere in their area, but so many here are so knowledgeable I thought someone might have some advice. If anyone has any input please let me know. I know we are all dealing with our own BC and I don't mean to go on and on, but if anyone feels inclined to do so please pray for baby Kyle.

Thank you.
Sincerely,

Liz J.