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Old 12-10-2006, 12:34 AM   #1
StephN
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Join Date: Nov 2004
Location: Misty woods of WA State
Posts: 4,128
Update - Not Over the Hump ...

... but the 2 spots in my brain are 3-months stable and even a little smaller. The one that was not operated on and presumed to be radiation necrosis from the Gamma Knife procedure is only 6.9mm (it was about 5mm when Gamma Knifed).
There is some cerebral/spinal fluid buildup at the back of my head again, but it is not a lot, and hopefully is just part of the healing process after the surgery in Oct. (I don't like it though, gives me a bad feeling...)

So, results were mostly good this week and next brain MRI is in 3 months. The docs are feeling good about my case, especially since I am NED from neck down and there have been no new spots in my brain since the original two that showed up 2 years ago. (OH! How I still recall that message on my recorder from my med onc that they found something. It was harrowing and bone-chilling.) But, here I am 2 years later with no new tumor activity anyplace.

Then there was the root canal on Thurs. But that woman endodontist was fast, accurate and gentle. I was out of her office in less than one hour!

Just a little positive news from out here in the Misty Woods.
__________________
"When I hear music, I fear no danger. I am invulnerable. I see no foe. I am related to the earliest times, and to the latest." H.D. Thoreau
Live in the moment.

MY STORY SO FAR ~~~~
Found suspicious lump 9/2000
Lumpectomy, then node dissection and port placement
Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR -
Adriamycin 12 weekly, taxotere 4 rounds
36 rads - very little burning
3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum
Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED!
2003 & 2004 no active disease - 3 weekly Herceptin + Zometa
Jan 2005 two mets to brain - Gamma Knife on Jan 18
All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET
Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying
Continue as NED while on Herceptin & quarterly Zometa
Fall-2006 - off Zometa - watching one small brain spot (scar?)
2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava
2008 - Brain and body still NED! Port removed and scans in Dec.
Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011
STILL NED everywhere in Feb 2014 - on wing & prayer
7/14 - Started twice yearly Zometa for my bones
Jan. 2015 checkup still shows NED
2015 Neuropathy in feet - otherwise all OK - still NED.
Same news for 2016 and all of 2017.
Nov of 2017 - had small skin cancer removed from my face. Will have Zometa end of Jan. 2018.
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