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Thanks Lani
Lani,
I want to thank you for your posting regarding reconstitution of Herceptin. I have been experiencing severe and I do mean severe pain since beginning Herceptin. Since I only get Herceptin I knew that was what was causing the pain. I had tried every week and every three week infusions seeing if the pain would decrease -- it didn't. I was in such pain that I was just about ready to tell the oncologist that I wanted to go off Herceptin. Your posting pointing out that you could have the Herceptin reconstitued with saline water instead of benzyl alcohol caught my attention. I asked to have my last infusion of Herceptin reconstituted with saline water which my oncologist agreed to. What a difference!! Now I can finish my year of Herceptin without having to deal with the severe muscle/bone/joint pain. Thank you so much.
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Kate
Stage IIIC Diagnosed Oct 25, 2005 (age 58)
ER/PR-, HER2+++, grade 3, Ploidy/DNA index: Aneuploid/1.61, S-phase: 24.2%
Neoadjunct chemo: 4 A/C; 4 Taxatore
Bilateral mastectomy June 8, 2006
14 of 26 nodes positive
Herceptin June 22, 2006 - April 20, 2007
Radiation (X35) July 24-September 11, 2006
BRCA1/BRCA2 negative
Stage IV lung mets July 13, 2007 - TCH
Single brain met - August 6, 2007 -CyberKnife
Oct 2007 - clear brain MRI and lung mets shrinking.
March 2008 lung met progression, brain still clear - begin Tykerb/Xeloda/Ixempra
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