Herceptin Joint Pain - Does it last the whole year??

[tousled1]

Hi Christine,

I started Herceptin in June and am plagued with bone/muscle/joint pain. Since I am only on Herceptin, I know that it is the culprit. I have talked to my oncologist about it but she seems to disagree with me that it's the Herceptin. I'm going to a pain management doctor wnad receiving pain medication from him which really helps. According to the pain management doctor muscle/bone/joint pain is a huge side effect of Herceptin. I know that with each infusion I get the pain gets worse. I have tried getting the Herceptin every week and then switched to every three weeks to see if the pain would be less. No difference in pain level whether I get the infusion every week or every three weeks. So I have opted to go the every three weeks. Matter of fact, I go this Friday for my Herceptin. I have been complaining since day number one that Herceptin and I just do not get along very well. At least all my scans and markers are good so the Herceptin must be doing it's job. Hang in there as I understand that once you stop the Herceptin the side effects slowly diminish. There was a post entitled "Herceptin side effects - real or perceived" on the board. You may want to do a search and find the thread. I'll look for it and post it if I find it.