I am also on hold for Herceptin
I was very shocked last Wednesday when my onc said we are halting Herceptin for six weeks. Before I started AC, my muga score was 70. It is now 54 after 36 weeks of Herceptin. Doctor said 16 point drop means stop Herceptin. If my score isn't higher in six weeks, I will be finished treatment. I have to trust that nine months is enough for me. It was a shock because I could see the finish line ... February I would have had my last Herc treatment. I also felt pretty well. Since a 54 muga score is in the normal range, I'm glad my oncologist is so cautious. But the setback really blindsided me. What surprised me was the return of all my fear about cancer, with a few new fears about my heart. I went back to work Thursday and Friday and was essentially useless. I attended some meetings, but coudn't do much else. I feel better today after resting and caring for myself this weekend. Perhaps I'll spend an hour with the psychologist at the cancer center talking this out. I had a lot of trouble with the adriamycin chemo and came through that. I'll come through this ok too. But any setbacks or delays in cancer treatment sure are scary.
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MJO
IDC, Stage I, Grade 2
Oncotype DX Score 32
Her2++ E+P+, Node Neg.
Lumpectomy 11/04/05 Clear Margins
3 Dose dense AC (Couldn't tolerate 4)
4 Dose dense Taxol & Herc. (Tolerated well)
36 weeks Herceptin (Could not complete one year due to decrease in MUGA score)
2 years of Arimidex, then three years of Femara
Finished Femara May 2011
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