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Dear Sarah,
The "Dr. Slaymon" for IBC treatment is Dr. Christofanelli at M.D. Anderson. He just opened up the new IBC Center there. Glad your friend has you there for her to help in her fight with the beast!
I left NED land last week and I tried to get on a Tykerb study this week, but no luck - one just closed and one hadn't opened yet that I would fit into - all others needed more chemo after recurrance...on to KOS-1022 and Herceptin.
Krysti - Indy
dx IBC bi-lateral 3/05, ER/PR-, Her2+
4 T/4 AC dose dense
bi-lateral MRM 7/05, nodes negative
48 rads/2x per day
Herceptin 12/05 late because of bad tests
10/06 spots on lungs get bigger
Clinical trial starts 11/7, Herceptin and KOS-1022
May we find the cure!
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