Update after no-surgery date....

[Esther]

Well, even though my brain surgery for the 18th was cancelled, it wasn't smooth sailing after that.

The swelling was gone due to the Decadron doses, 4 mg every 6 hours, but the side effects were pretty awful. On Friday the 20th I tried to reduce the dosage, but my vision blurred, so I had to increase it again.

The decadron made me feel like I had a hole in my stomach, really bad GER.

Finally got some relief, when I was able to reduce my dosage to 2 mg, only 2-3 times a day, and start on some Nexium, as well as the Zantac I was already on. So FINALLY by Friday the 27th I was feeling better!!!

So all in all it was 2 very bad weeks, no surgery though, and we still don't know if there is tumor growth or radiation reaction from the SRS procedure from Jan 18th of this year. Last MRI was the 18th of Oct, no swelling, and will follow up with another MRI before Thanksgiving.

It feels just like it did in early Feb, when I experienced extremely rapid downsize in the lesion originally, so I'm hopeful it is reducing in size again. I'm still not sure why it rapidly decreased in size early this year, where we thought it was totally dissolving, then appeared to begin to grow or swell again, at a very rapid rate again. Maybe I'll never know for sure, but for now, I'm back to doing ok, and feeling better, and just cruising until the next MRI!