WBR done- multiple brain recurrance - now what? - Joe may need help here
Hello,
Ive been a once in a while wanderer to this website for about 2 years (Pre-new registration requirements) now. About six months ago, my mom who had been undergoing treatment for liver mets for about a year, had painful headaches and vision loss. She went through a brain scan which showed that her whole brain had multiple lesions throughout (too many to count). She underwent WBR and for the past 4 months has been on Temodar. 2 months ago as a followup the brain showed 2 to 3 minor lesions (which the onc said were dead cells). However, today on her 2nd followup the scans revealed once again many mets throughout the brain. Im so down I cant think straight, and Im pretty sure there are no more options (cant do WBR again and no other chemo passes the blood brain barrier). The Onc recommended Gemzar with Herceptin (Does this combo pass the blood brain barrier?).. Here in Pakistan, we do not have access to Lapatinib either...We wrote to GSK only to be declined...Is there anything that can be done to get this drug, esp since her onc recommends it. Joe is there anyone we can appeal to?
Any recommendations would really help.........pls help
Shahyan
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