Who's using Temodar for brain mets?

[Emmay]

If you are using Temodar (a.k.a. Temozolomide) for bc brain mets, how long have you been on it, is it working to control or shrink brain mets, and what are your side effects, if any?

My sister has been on Herceptin for 2 1/2 yrs, which is keeping the rest of her body clear (post-mastectomy), but she's had 2 craniotomies, WBR, and 4 rounds of CyberKnife Radiation to treat 2-4 small new mets each time. She tried the Lapatinib (Tykerb) trial last year, but it did not work for her. She is doing very well right now, but we would like to find a way to halt these insidious mets.

Thanks for your help.