Hi. I'm new here. I started getting Herceptin and Taxol in August every week for 12 weeks. My last of that was 11/29th. Then I began Herceptin alone every 3 weeks 2 days before Christmas. My scan before beginning Herceptin and after Adrinamycin/Cytoxin was 75% (Sept.) My November 30th scan was 50.5% and my January 31st scan was 42% ... I was to get the Herceptin after that scan the same day. However, the doctor called the infusion center and told me he could not give it to me because the protocol is 50% for Herceptin.
On December 29th, 1 week after getting Herceptin I went to the emergency room and was there 8 hours ... sent home saying nothing was wrong. On Christmas Day, my feet swelled up so bad I had to take my shoes off and I began to have shortness of breath. They put me on dieuretics. I got my second dose in January and even on the dieuretics my feet still swell at times and I still get short of breath at times. I was thinking I was crazy after going to the ER.
I have been trying to find out when to worry ... should I worry that my percentage is only 42% ... the doctor said not to worry they will do another test in a month (the onc) ... he also said that at 42% there are no symptoms. However, I get short of breath and have swelling in my feet and he says that could be from something else. I know in my heart it isn't because I've never had those problems before.
Anyone else been through this? If so please email me at
diana_k@comcast.net I would be interested is hearing from you.
Thanks,
Diana
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