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Old 08-09-2005, 07:23 PM   #1
triciak
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I just got the report today on my PET scan and I am so happy I have to share with you all. The report states "no PET evidence of metastatic disease"!! There was a question of something showing up on a CT scan last month in T-11 vertebra, but it is not cancer. And the nodules in my lungs no longer show cancer. The PET scan took a long time, as they do, and I was praying hard while waiting for the radioactive glucose to settle in my body before they started the scan. And the whole 45 minutes or more I was in the machine, the rythmic sound of the motor kept saying to me over and over "NO EVIDENCE of DISEASE", like a mantra. I kept telling myself it was just wishful thinking, but it was like hypnosis, those words repeated emphatically over and over. I was so sure after the scan that the words were true that I told my husband the scan would show no evidence of disease. Yet this morning I nearly had a panic attack before I saw the oncologist. They couldn't find the report for about 10 minutes and my hopes got shaky. Then the oncologist looked at it and in astonishment told me what it said. Of course I have a copy. He said "No evidence of cancer! What am I going to do with you!" And I said "What, you've never had anyone NED before?" I told him how some of you have used the term "dancing with NED" and he loved it! He suggested that we continue the herceptin for another year, and I am thinking I will. However, my echocardiogram this week showed 50% blockage in my carotid arteries and one large heart artery 80% blocked and one 50% blocked so I still have the results of the heart attack a year ago to contend with. But at least it's only one main problem now and not two. The muga was 58% so I don't think the herceptin has caused any new heart problems. Any advice from any of you about the herceptin for another year? I will probably stay on femara, too.
I feel very blessed to have reached this point again in my 20-year battle with BC. This is the second stage IV in which I've reached NED. Last time it was 14 years ago. I am 75 and still have a lot of living to do. All I can say is, follow the old Swedish proverb "Yoost kip a'kippin' on!" You have all been an inspiration to me, and I told my oncologist about this site and to call me when they get new her2 people and I'll steer them to you. Thank you so much for all your help! I will keep checking this site every day and praying for each one of you! Love, tricia
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