Thanks for your responses.
I have heard of one oncologist who would like to do a trial, but can't get the funding. Also I think for some of us the trial might not be useful. It would take too long to get the reults to help us.
As I said before we are declining in number. Those who have mets get it, and those who are newly diagnosed get it. So there is this group of women moving thorough the life that is cancer survival who might benefit from it and who won't get it. Unless we can get any docs to prescribe off-label. Know any?
Funding is difficult to come by at the best of times and why fund a trial for a group of people who are descreasing in number.
Also with regard to recurrence rates, the stat I heard was 9% per year.
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