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Old 01-18-2008, 02:24 PM   #1
chicagoetc
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Join Date: Sep 2007
Location: Near Chicago
Posts: 196
AC then T+Herceptin then hold the T(axol)?

AC (every three weeks) was finished in November. On December 7 2007 weekly Taxol plus Herceptin was started. My first exposure to Taxol was somewhat dramatic (a "hypensitive" reaction that occurs within the first few seconds of exposure). But we were able to continue with the Taxol and Herceptin that same day after some hydrocortisone and a half hour break (of coughing) with no additional problems.

On 1/4/08 I told my doctor about some peripheral neuropathy/hypersentivity/aches (mostly hands/feet). He said I could skip a dose of Taxol if it got worse. Last week (1/11/08) I told my nurse it was worse and the doctor told her I should skip the Taxol.

Today, I go in. I have a minor sore throat but my bloodwork came back fine. The neuropathy et al is better (not totally resolved but better, but I really didn't tell anyone at the clinic this). When my nurse checked in with the doctor she said all bloodwork came back fine but that he wanted me to not have Taxol this week either. He will meet with me next week and will talk with me then.

I don't get it. I wanted to get through the Taxol, not stop it or delay it (as much as I hate the side effects). Probably I will have to wait until next week to know. But my brain is thinking a dozen reasons (I have a poor response to Taxol...or they want me to get Radiation before Taxol...or my new insurance needs more information to cover the Taxol...or I need some other kind of test...or maybe more reconstructive surgery first...or maybe he learned something at the conference in San Antonio that will make a difference...and on it goes).

Do I just need to be patient or do one of you know why this might be? [I'm not feeling very patient though I'm halfway relieved for another week to recover from some of the Taxol.]

Melanie
__________________
Diagnosed: 7/13/07 (or 7/7/07)
Surgery: 8/15/07 Modified Radical One Side with Lymph Node Dissection
Pathology Report: ER/PR-, HER2+ with FISH at 8.4 copies, Grade 3, Stage IIIa, 3.2 cm tumor plus 4/19 positive lymph nodes
Portacath: 9/7/07
Chemo: 9/14/07 with AC (every three weeks) for four rounds
Physical Therapy for ROM Loss / "Cording" (but not Lymphodema)
Taxol + Herceptin weekly (started 12/2007 with 8 of 12 Taxol)
Radiation: (28 rads from 3/07 to 4/07)
Reconstruction (silicone implant)
Herceptin done (10/08)
Cognitive Remediation (11/08 - 12/08)
Lymphedema Diagnosed 5/10/10 (almost 3 years post cancer diagnosis)
Lymphedema Rehab 9/10/10 - 11/10/10
Six years NED...7/7/2013!
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