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Latest Path Report, good thing its gone.
Many of you know of my on-going pain I had in my left remaining breast that I decided to have a prophylactic mastectomy of. I saw my surgeon today and I asked for my path report. The path report says" Left breast mastectomy: Florid epithelial ductal hyperplasia, chronic lobulitis, and duct ectasia. No atypia or malignancy identified.
If I understand my surgeon right, he says there are like 3 stages before it becomes cancer. (Don't quote me...I was in PAIN from my mastectomy...it was so hard to even get there let alone listen.) But he said that "Florid epithelial ductal hyperplasia" is NOT cancer yet. But in time it would turn into cancer. He implied like 8 to 10 years. He said it is still benign at this point and in time it would turn into DCIS and then IDC. (Hope I got this right?) The way I understand it is my breast was full of this nasty stuff. I asked IF that was causing the PAIN I've complained about now for 6 months? He said no. (I am NOT sure I am buying that yet...but we will see?) Something HAD to be causing it?
My concern is since he did NOT touch my sential nodes during this simple mastectomy because it was just a pprophylactic...not due to cancer. I STILL have this horrible pain in my axilla..expect now its about 2 times worse then before the surgery. I asked him about it and he said he doesn't know what's causing it and said maybe it is my port that runs in my upper arm into my chest? (when I first asked him along time ago if it could be my port..he said "absolutely not".) Yet now he says it can be.
I don't know what it is...but NOW after this latest path report of cells that can and would turn into cancer...I want to get to the bottom of it quickly...once and for all. I asked him HOW he could be sure its NOT cancer in my axilla? He said it does NOT work that way. He said I would have to have cancer in that breast *first* and then have it spread to the axilla. (Do any of you know if that is completely true?)
Chelee
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DX: 12-20-05 - Stage IIIA, Her2/Neu, 3+++,Er & Pr weakly positive, 5 of 16 pos nodes.
Rt. MRM on 1-3-06 -- No Rads due to compromised lungs.
Chemo started 2-7-06 -- TCH - - Finished 6-12-06
Finished yr of wkly herceptin 3-19-07
3-15-07 Lt side prophylactic simple mastectomy. -- Ooph 4-05-07
9-21-09 PET/CT "Recurrence" to Rt. axllia, Rt. femur, ilium. Possible Sacrum & liver? Now stage IV.
9-28-09 Loading dose of Herceptin & started Zometa
9-29-09 Power Port Placement
10-24-09 Mass 6.4 x 4.7 cm on Rt. femur head.
11-19-09 RT. Femur surgery - Rod placed
12-7-09 Navelbine added to Herceptin/Zometa.
3-23-10 Ten days of rads to RT femur. Completed.
4-05-10 Quit Navelbine--Herceptin/Zometa alone.
5-4-10 Appt. with Dr. Slamon to see what is next? Waiting on FISH results from femur biopsy.
Results to FISH was unsuccessful--this happens less then 2% of the time.
7-7-10 Recurrence to RT axilla again. Back to UCLA for options.
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