***What was your date of dx, stage, treatment and current status...???***

[RhondaH]

Maryanne had ANOTHER great idea. I for one like to know everyones date of diagnosis, stage, nodal status, er/pr status, her2 status, treatment and current status. I also know that as time goes on people get on with their lives and don't check in as much, but even if on your anniversary you could check in and let us know how you are doing (also this helps the newly diagnosed looking for hope in those that came before them) that would be great.

Dx 2/1/05 (age 40), Partial Mastectomy 2/7/05
Stage 1 (1.6 cm)
Node negative (6 nodes removed)
ER/PR-
HER2+ (FISH 3.16)
Finished 6 rounds of dose dense TEC (Taxotere, Epirubicin and Cytoxan) on 5/18/05
Finished 33 rads 8/1/05
Started 1 year of Herceptin on 8/18/05 (will be done 8/10/06)

Next...

Rhonda

[Chelee]

Hi Ronda, A very good idea...I like it.

DX 12-20-05
Right side mastectomy on 1-3-06
Stage IIIA
Her2/Neu 3+++
5 of 16 positive nodes
Er & Pr positive
Richardson score 9 of 9

Finished three rounds of Herceptin, Taxotere, & Carbpotin, along with weekly herceptin.

First chemo was on 2-7-06. I had one hospital stay that delayed treatment...so I am about a month behind schedule.

Next full cycle of chemo 5-1-06

[Bev]

I guess it could be useful to have this on one thread.

Dx 5/05 Lump 7/05
stage 2 (2.9mm)
node neg (2 rem) SNB
ER/PR+
Her 2 + +++ IHC confirmed by FISH
Beg 4AC 9/05, Fin 12 taxol & H 2/06
Fin 35 rads 4/14/06 Fin 1 yr H 11/06

[dberg]

Dx July 2004 at age 45

Stage III, 5 cm, 2/13 nodes , Her2+++, ER/PR+, and lots of other nasty proliferative stuff.

Clinical trial SWOG 0221: Weekly A, daily C/15 weeks; T 12 weeks (no Herceptin trial as onc didn't think the control arm was aggressive enough)
Herceptin started June 05, following HERA protocol.

Rads to chest wall, 35 I think!

Currently on tamoxifen and fosamax.

Anybody else's onc suggesting 2 years of herceptin???

[Monique M]

Dx 08/30/2004 at the age of 39

Lumpectomy 09/05/2004 (Tumor 4.1 cm, 1 sentiel node with microsopic evidence of disease)

Bilateral Mascetomy 09/16/2004 1 node of 9 with microsopic evidence of disease Stage IIB

ER/PR-
Her 2 + +++ IHC confirmed by FISH

No further evidence of disease as of 9/30/2004 (based on PET, CT scan and tumor markers)

Began 4AC (dose dense) 10/15/2004

Herceptin started weekly in December 2004 with taxol every other week for total of 8 weeks

Chemo ended 01/27/2005

Herceptin every three weeks starting in 02/2005

Currently in second year of herceptin-- with anticipated end in November of 2006

[michele u]

Dx Aug 2003

stage 3b 35 pos nodes
er/pr neg
FISH 10
IHC 3
AC x 4 taxol x 12 then one year Herceptin
then did vaccine trial Seattle

[Patricia]

I found the larger lump myself in the shower. I had never had a mammogram because of my age. When I had the mammogram it still did not show even though everyone could feel it. Showed on the ultrasound.
Dx IDC July 22, 2005, 37 yo at dx
Partial Mastectomy July 29, 2005, 2 lumps, 1.6cm IDC/.6cm benign fibroadenoma. Sentinal node biopsy - 3 removed/0 nodes positive
Her2+(100%)/ER+(30%)/PR+(23%)/Stage 1/Grade 3
Dx Papilary Thyroid Cancer Aug 15, 2005
Total Thyroidectomy Sept 15, 2005
A/C x 4
Taxol weekly x 12
Herceptin started Dec 05, now on every 3 weeks.
Lupron every month
Started Aromasin 2 weeks ago
Rads still to start (delayed due to scare on 6 mo mamo, which turned out to be nothing)
Thyrogen scan in Feb showed some remaining Thyroid cancer, need to do Radioactive Iodine in summertime.

Patricia

[Yorkiegirl]

Dx'd 3-23-05 w/ 3 cm tumor Age 48 1/2 (turned 49 July)

MRM 4-5-05 w 2 tumor's 5cm, and 6 cm (right side)
5+/16 nodes
Stage 3
ER/PR-, Her2/neu ++ 3.42 confirmed by FISH
ki67 78%

Begin Chemo 5-2-05 4XAC Dose Dense , 4X Abraxane Dose Dense (ended August 05)

28 Rad's ended October 13 2005

Started Herceptin Weekly August 2005 for one year, will be done this August 2006.

Had a Simple mastectomy left side after Mamo showed incresed micro-calcifications. Jan. 17 2006.

Taking Fosamax as well since I was dx'd with severe Osteoporois Feb. 2005

Vicki

[Kimberly Lewis]

Dx 5/05, mamogram misread, was supposed to be a tiny tumor with a lumpectomy performed 6/05, ended up being 5.3 CM invasive lobular with DCIS up to the borders.
7/05 Mastectomy left breast Stage 3A, 7 of 20 nodes involved. Her2 2+ - 3+, ER+PR+
8/05 4 rounds of dose dense AC, one of Taxol discontinued because of allergic reaction. 30x radiation
12/05 Herpceptin treatments every 3 weeks for a year.
2/06 Prophylactic Mastectomy right breast

Herceptin treatment ended - I still struggle to feel positive about this. Taking Femara now after total Hysterectomy. 12/12/06

[juanita]

diagnosed 9-2-04 at age 41
lumpectomy 9-7-04
no node involvement
stage 1 grade 3
2 rounds tac
35 rads
switched oncs
6 rounds cmf
started herceptin 6-05
so far so good

[kristen]

Dx'd 10-03 at age 41
3 tumors largest being 1.4 cm, microcalicifications over 5cm area orginally thought 3b
Mastectomy 11/03, stage 2b, grade 3
3/12 node involvement, er/pr -, FISH 7.6
BRCIG study, CTH arm, 6 rounds, 1 yr Herceptin 12/04
30 rads
reconstruction 12/04. finish revision 5/06
NED

[Andi]

DX 6/30/05 Age 52, Stage 3c, 17 of 20 nodes pos, Estrogen +, Her 2 +++, Tumor 2.8, Lumpectomy 7/13/05, Began 4 dose dense A/C 7/24/05
Finished weekly Taxol with Herceptin 12/7/05, Began Herceptin every 3 weeks 12/14/05, will complete 9/13/06. Finished 6 weeks of radiaiton 2/28/06. Currently taking tamoxifin.

[Cathya]

Hi;

Found the lump myself in the shower. Dx Oct 2004, lumpectomy Nov 15, 2004. No positive nodes, 3 cm tumor left breast. Dec 30, 2004 1 cm tumor found by onc in supraclavicular node left side, inoperable. 4 AC, 4 Taxol, radiation...particularly to clavicular area with boosts. During chemo I requested that I be checked for her2 and was found positive by FISH....borderline. Began herceptin during last Taxol infusion and remained on it until 4 weeks ago when my muga score went to 42. Am ER/PR + and taking Arimidex. So far, so good. Going for brain scan and bone density shortly. Trying to track down Bayer Her2 serum test.

Cathy

[SandyR]

Hi there...I am new to this board. Here is my DX

Diagnosed 7/05, Age 49, 5 cm lump left breast -- Her2+++ PR/ER negative, 4 lymph nodes removed which were all negative, Staged at 2 ? (because of the size of lump)...
8/05 began chemo: 4 rounds Adriamycin/Cytoxin, then 4 rounds Taxotere/Herceptin....continuing with Herceptin for a year (at least). I have just completed 33 blasts of radiation (5 days/wk for 6 and half weeks).

My onc says she is waiting for release of data to determine whether or not I am on herceptin one more year. MUGA is currently 68 (I think vigorous exercise helps!) They are also watching a node in my lung (currently believed to be scar tissue NOT cancer) with MRI's.
Thanks to all of you for posting....you all give me much hope. Thank you!
SandyR in Everett WA

[BEVIE]

Great idea!

I was DX 10/2000 age 49, lumpectomy tumor 1.5cm node neg. Onc. started chemo 2 CMF's before HER2 DX came back positive by FISH then switched me to 4 AC's 28 rads. 9 months of Tamoxifen 4 yrs of Arimidex so far so good.

[Michelle]

Dx 3/05 @ 34 yrs. old
er+/pr+ her2+++
stage 1c 1.9cm tumor
lumpectomy-0 nodes
4 AC- 4 taxol w herceptin
35 rads
5 yrs. of tamoxifen

Onc. will offer 2nd yr. of herceptin depending on muga-and I will be offered something after the tamoxifen
Michelle

[pattyz]

12-1999: Age 50, Dx'd Invasive Ductal & Inflammatory. Two tumors, upper and lower inside quadrants R/breast.

1-2000: Mast., 6/26 pos. nodes. ER+PR-, Heu2+++ StageIIIb - 4rnds A/C, no rads (my choice & no medical ins.)

7-2002: Dx'd mediastinal node/s mets, (surgical biopsy), 'spot' on lung and pelvis. Arimidex briefly.

9-2002: Dx'd brain mets. (mininally symptomatic) Two lesions, 1.5cm, 6mm. SRS focalized tx successful. Refused WBR.

11-2002: Navelbine/Herceptin 4rnds for systemic mets, scans show NED.

3-2003: Progression of brain mets. 14 new lesions visable. Asymptomatic. Continue to refuse WBR. "Watch and wait " approach. Treat in small batches with two more SRS, two CyberKnife procedures through 5-2004. NED in body.

3-2005: Progression brain mets - maybe 10 new lesions, asymptomatic. (otherwise NED) Again 'watch and wait' approach until...

8-2005: Dizzy 24/7 in the course of just one day. Begin Temodar/Xeloda.

9-28-2005: Following 2 rnds, MRi shows response of nearly 50% shrinkage in many brain mets, including brainstem/pons. Dizziness gone.

11-28-2005: MRi duplicate of previous films- after 4rnds T/X, mets remain responsive w/ more shrinkage nearing 50%. Continue Temodar/Xeloda.


12-19-2005: Onc confers w/rad onc re: past scans. Determine that some of the 'new' lesions are not new at all, but old treated spots just vaguely visable.

1-26-2006: MRi shows all stable. Will continue chemo combo.

3-27-2006: Still STABLE, no new mets. Taking chemo break after six mos tx. Keeping up every two month MRi's. Feeling good!

[Sandy H]

I am kind of far out compared to the rest that have already posted. It is important for me to say that I am Inflammatory Breast Cancer (IBC) a rare and very agressive cancer. I was told I had no long term survival perhaps, a couple of years and certainly, not 5 years!! I was diagnosed 03/01, IBC, stage 111b, (as all IBC is a stage 111b or IV if it has spread to the organs or bone)ER-/PR-, Her2+++, 44 pos. nodes. Treatment Ad/Taxatere x4, surgery, Rt. MRM with skin graft to chest wall, and my choice of Lt. simple mastectomy. 44 pos nodes. Radiation x5, then back to chemo Taxol and Herceptin x12 for skin mets (cancer in the skin/chest wall, IBC is a lymphatic disease) In and out of chemo (Taxol has been my miracle drug for skin mets) and NED to chest wall up to present. Scans every 6 months, do to my being IBC, so far no organ or bone involvement. I do lots of supplements, diet of lots of fruits and vegies, avoid dairy, meats, processed foods, exercise daily, drinks lots of water and get 10 or more hours of sleep at night believe in the power of prayer. I did reach my 5 year mark last month and still doing well. My doctors all tell me I wasn't suppose to still be here. For those out there that are given a death sentence or poor prognosis there is HOPE!! Sandy

[jener8er]

What a great idea - I love to hear everyones dx!
Me:
Mammo 12/03 - Clear (ordered as left breast was larger than right, felt different and hurt while I was nursing my daughter)
8/04 - Felt large lump in left armpit.
9/04 - Felt pea-sized lump in left breast
10/04 - dx IDC, 1cm, +DCIS, 4/20 + nodes (4cm+), ER/PR- HER2+++, Grade 3, Stage 3a
TX - Left MRM, 4xAC, 4xT+Herceptin, 35 rads, currently on 2nd year of Herceptin, will continue till December 06.
Proph. Mast with DIEP bilateral recon. June 06
All recent scans (brain, PET, bone) CLEAR!

[athena453]

I think my info is in my signature. I am currently 28 and NED. Next set of scans 5/5/06.