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Old 12-16-2005, 01:11 PM   #1
tammymarie1971
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Join Date: Sep 2005
Location: British Columbia, Canada
Posts: 198
Question Anyone had similar situation???

I posted my bone scan results a couple of days ago..I need more advice or treatment stories pertaining to this situation..
Has anyone not responded to herceptin alone,and actually progressed with bone mets..did you add a chemo and become NED???? Has anyone become NED after rads for spine mets or any other bone mets???If you added a chemo and had results which chemo or treatment did you do??I am also ER+ not sure about PR however I was at original dx only a +1 for estrogen..Is it more likely to respond to treatments for mets if my estrogen is shut off???? If you have any advice or know of where I might ask about this Please let me know!
Thanks you guys!!
Tammy
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Dx'd Dec'01 while 6mos preg. with #4. child (30yrsold)Mastectomy/AC chemo/radiation/ Recur:Mar'04 liver mets: 3 taxol/herceptin /liver resection/3 taxol/herceptin. Cured?
Recur: May'05 spine & Hip. New onc
treatment in Mexico Feb'06-Mar-06
back to Mexico June/July '06
Currently on herceptin/Zometa/Femara-recently added navelbine
Switched to arimidex Nov'06
ovaries removed June '07
ca15-3 in May'06 was 102
ca15-3 summer of '07 holding steady at 23!
ca15-3 slowly rising Dec & Jan 36, 38, 41 and Feb was 36
Feb '08 Liver, lung & Brain scan NED... bones are stable with even a couple spots gone. as compared with '06 scans
May '08 ca 15-3 is 55. Treatment is zometa, vinorelbine, herceptin and aromasin.
No signifcant changes.
Feb'09 Started Xeloda with herceptin..no more hormonals
Feb'09-June'09 tumor markers coming down again from 155 to 84
May'09 blood clots in lungs vena cava filter put in..Heparin shots daily for now.
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