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Thanks Kirsten, I have been lurking, Lolly sent me an e-mail before you sent out a search party. I have been having more problems with my neck this time because unless I have another MRI I don't know where I am at, my right boob is still red from radiation so I can't tell if the skin mets is still there, if I have a biopsy my doc said it could be either way and still not be anyway, if that makes sense. I was going to have another bone scan but thought I would see my chiropractor first, he said what I already knew, my neck is to put it politely stuffed. He still managed to manipulate it a bit for me and release some air pockets. So I can't tell if my neck is stiff because of all the radiation to it, I was warned it could effect some nerves, well they were right there. If you can imagine a car chamios dried up after you use it, that is how the inside of my neck is and numb from the ear down along my shoulder, it is also numb from neuropothy, I had a head pack along that side of my neck when I had the Taxol, the heat made the chemo go straight to the stubborn node first and then of course the finger tips and bottom of my feet are also numb. When I wake in the morning or sit in one position for long my hands are hard to close. I can't have Celebrex or I will get heart failure again, and my other shoulder is playing up where it was fractured and not treated, so if I was a horse they would of shot me long ago. I keep telling every one I am in a lull, and if I don't go looking for any more BC remnents I won't find them and I will be just fine. Of course that isn't true, no matter how much we try to switch off from the demon it is still there and we are weary of any changes. I have been taking Hawaiin Spirulina, if you look it up it is the best thing ever, including keeping the PH level up in our body to fight off any cancer cells, so I am putting a lot of faith in that theory as well. I am still concerned I may have Pagets eventhough I have not tested potistive for it in the past bit I was reading the only way to rule it out is to have an MRI of the breast. I have changed my Herceptin to triple, the new nursing staff are, there is only one to describe them and that is BIT.... and I let the hospital know as well, screaming at me and trying to tell me what dose I was having when they had never even heard of it before they met me. I put the complaint in the box provided and then had to break into it because I remember hearing one of the nurses say that if they didn't like what they read they ripped them up, so I personally delivered mine, one of the nurses commented to my sister that "I WAS ON THE WAY OUT" the way they have been carrying on has been so childish I want to smack them out, if I do I can put it down to my drug addiction to chemo, think it will work. Apart from all that I have been avoiding making appointments so I can have a little normalilty in my life, but that is short lived, Monday I have to see the orthopeadic specialist form my shoulder, Tuesday face the nurses for Herceptin, Wednesday take my daughter to see about her Wisdom Teeth she is only 15, Thursday I have to see the heart specialist for my heart failure, Friday I am keeping my options open and all my appointments are at different hospitals. So it looks like my lull is about to be over and I will have to start looking at where I am at and hopefully find nothing. I am into my eighth year of treatment now, so much for my expiry date being 2000, maybe the melenium bug bit me and I will be around for the next melenium with all the radiaiton and drugs I have had I am getting younger in cells but will have to look at having a face lift. Thanks again for asking, talk to you soon.
Love & Hugs Lyn
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