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Old 01-10-2013, 04:36 PM   #1
IrvineFriend
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Location: Irvine, CA (Southern CA)
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First appt. to discuss chemo options. Any suggestions?

I'll be seeing my Oncologist on Monday since all my testing is done to discuss all my treatment options. My cancer is a little complicated because the majority of my cells are ER/PR- and a small number are ER/PR+ so I have to be treated for both. The rest of my stats are in my signature. Any suggestions for what I should ask about or "demand" during my treatment? My sister who was stage II ER/PR+ Her2- is going with me but our cancers are somewhat different so I'm hoping you can give me some guidance on what I should be asking for as part of my treatment.

I'm full of questions today but treatment starts next week and my head is spinning. Portacath goes in tomorrow.

Thank you!!!
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Julie
Live in Orange County, CA

Diagnosed with DCIS Oct. 2012

Bilateral Dec. 19, 2012
IDC, ER/PR-, Her2+++, Grade 3
Stage IIIa
15.6 cm
4/14 nodes + macrometastases
First thing each morning, I try on my bathing suit. Then, nothing worse can happen the rest of the day.
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Old 01-10-2013, 04:57 PM   #2
tricia keegan
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Re: First appt. to discuss chemo options. Any suggestions?

Hi,

I think Herceptin is a must (obviously!) and perhaps Taxol and Cytoxin, I had Adriamycin but don't think they're doing that now as later studies showed some later heart damage, sorry I can't help more but wish you well as you begin this and please keep us posted.
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Tricia
Dx July '05 IDC 1.9cm Triple positive 3/9 nodes positive
A/C X 4 ..Taxol/Herceptin x 12 wks then herceptin 1 yr
Rads x 36 ..oophorectomy August '06
Currently taking Arimidex..
June 2011 osteopenia/ zometa x1 yearly- stopped Zometa 2015 as Dexa show normal bone density.
Stopped Arimidex July 2014- Restarted Arimidex 2015 for a further two years on the advice of my Onc.
2014 Normal Dexa scan
2018 Mammo all clear, still NED!
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Old 01-11-2013, 01:34 PM   #3
mamacze
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Location: Madison, Connecticut
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Re: First appt. to discuss chemo options. Any suggestions?

Hi Angel!
What a turbulent time you are having - just an awful feeling right before that first appointment; small wonder your head is spinning.
You are a smart cookie; clearly an information seeker. Write down your questions and remember to ask them. Be present and listen with every cell in your body. And if you walk out of there feeling the slightest unease; set up an appointment for a second opinion. I am sure we have many California members who would gladly give you ideas for a person to go to for a second opinion.
Please stay with us and tell us how it goes.
Love and luck
Kim (from CT)
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2001 - Stage 0, lumpectomy, radiation, tamoxifen

2004 - Stage 4, mets to 4 lobes of lungs and liver, lumpectomy, er/pr -, her2 neu+++, Herceptin and Navelbine then Herceptin only.

2005 - Breast Ca vaccinations with the Tumor Vaccine Group in Seattle

2011 - Still Herceptin only and NED


2011, June - STOPPED Herceptin and kicked up my heels!

2012, February - 1 small tumor came back to haunt me in my lungs - back on Herceptin only, tumor stable.


2015, November - tumor on lungs removed (Segmentectomy), back on Herceptin only
Received U of W vaccine clinical "booster" Vaccine


2022 On Herceptin and NED continues - WOOT WOOT!
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