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Old 04-03-2010, 02:49 PM   #1
PatriceH
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Should I be scared?

First, next week, I have my first mammogram after a year of chemo, lumpectomy radiation. I sure hope it's clear.

Second, I was premenopausal, chemo put me into menopause. doctor said due to my age (49) that most likely I won't get that monthly "gift" back.

But that past few weeks, I've had symptoms of PMS...back hurts, feelings of ovulation, etc. I'm hoping it doesn't come back, but then again, if it doesn't what the heck is going on with my body?

I will be seeing my family doctor for a pap smear in a few weeks, so depending on what happens or doesn't happen, I can surely ask him. I don't see the oncologist until the end of May.

What is the experience of others on this?
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Old 04-03-2010, 04:03 PM   #2
tricia keegan
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Re: Should I be scared?

Hi Patrice,

I was 46 and in chemo pause too!

My onc said my period could return up to a year or more later so I decided on having an ooph and have no regrets. I've been taking arimidex since '06 and doing well still, I was highly triple pos so wanted to ensure the period would not return!
Hope your mammo is clear too and good luck!
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Tricia
Dx July '05 IDC 1.9cm Triple positive 3/9 nodes positive
A/C X 4 ..Taxol/Herceptin x 12 wks then herceptin 1 yr
Rads x 36 ..oophorectomy August '06
Currently taking Arimidex..
June 2011 osteopenia/ zometa x1 yearly- stopped Zometa 2015 as Dexa show normal bone density.
Stopped Arimidex July 2014- Restarted Arimidex 2015 for a further two years on the advice of my Onc.
2014 Normal Dexa scan
2018 Mammo all clear, still NED!
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Old 04-03-2010, 05:03 PM   #3
Becky
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Re: Should I be scared?

I was 46 and got the gift back 7 months after chemo ended. Like Tricia, I got an ooph so I could take Arimidex and never looked back. You could get it back again.
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Kind regards

Becky

Found lump via BSE
Diagnosed 8/04 at age 45
1.9cm tumor, ER+PR-, Her2 3+(rt side)
2 micromets to sentinel node
Stage 2A
left 3mm DCIS - low grade ER+PR+Her2 neg
lumpectomies 9/7/04
4DD AC followed by 4 DD taxol
Used Leukine instead of Neulasta
35 rads on right side only
4/05 started Tamoxifen
Started Herceptin 4 months after last Taxol due to
trial results and 2005 ASCO meeting & recommendations
Oophorectomy 8/05
Started Arimidex 9/05
Finished Herceptin (16 months) 9/06
Arimidex Only
Prolia every 6 months for osteopenia

NED 18 years!

Said Christopher Robin to Pooh: "You must remember this: You're braver than you believe and stronger than you seem and smarter than you think"
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Old 04-03-2010, 06:36 PM   #4
v-ness
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Re: Should I be scared?

get this one, i had my uterus and one ovary taken out over a year ago because of endometriosis, fibroids, etc. and yet i can absolutely tell that i am not menopausal even in spite of the chemopause. but i too have had the feeling of ovulation some months. there is no mistaking that feeling, and my breasts have also gotten swollen. my onco never remember that i have no uterus and is always asking when my last period was, argh. but i know she must see so many people, so why remember my period. anyway, given this fact, i am going on tamoxifen right after radiation and i've had a test to determine my hormone level, which will be repeated for months until she thinks i am post-menopausal and can switch off tamoxifen. our bodies are mysterious things!
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8/09 - IDC 1.8 cm triple positive, lumpectomy left breast
10/09 began chemo (taxotere & carboplatin) and weekly herceptin.
1/21/10 finished chemo, continued on herceptin every 3 weeks until 10/2010.
2/10 began 7 wks of radiation
6/10 mom dies of primary peritoneal ovarian cancer
8/10 got my last remaining ovary out
10/10 mammogram all clear
3/11 MRI shows 5 'spots' in right breast, largest 1 cm unidentifiable on US
needle biopsy proved the largest to be old inflamed cyst -phew!
7/10 switched to Arimidex
8/9 switched to Femara - allergic to arimidex
Femara made me lose hair quickly so switched to Aromasin
Aromasin made my hair fall out too and the bone pain was too much.
back on Tamoxifen 1/2013.
blood clot from trains and planes 5/2014 so on coumadin per onco for as long as i am on tamoxifen
tamoxifen was supposed to be up with my 5 yrs in may but my boyfriend was diagnosed with stage 4 colon cancer so i am staying on tamoxifen indefinitely because i want some ammo against BC, given the stress. lost my husband in only 10 wks in 2007 to stage 4 esophageal cancer.
cancer's screwing with another man i love
2/2016 - 6yrs in remission, off tamoxifen and off coumadin - yay!
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Old 04-04-2010, 09:29 AM   #5
Lien
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Re: Should I be scared?

I was on zoladex for 5 years to stop my ovaries. I stopped taking the shots 6 months ago, and now at age 50 the Gift came back. Sigh.
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Diagnosed age 44, January 2004, 0.7 cm IDC & DCIS. Stage 1, grade 3, ER/PR pos. HER2 pos. clear margins, no nodes. SNB. 35 rads. On Zoladex and Armidex since Dec. 2004. Stopped Zoladex/Arimidex sept 2009 Still taking mistletoe shots (CAM therapy) Doing fine.
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