HonCode

Go Back   HER2 Support Group Forums > her2group
Register Gallery FAQ Members List Calendar Today's Posts

Reply
 
Thread Tools Display Modes
Old 09-17-2009, 07:29 PM   #1
Faith in Him
Senior Member
 
Faith in Him's Avatar
 
Join Date: Jul 2007
Location: Northern California
Posts: 764
Thumbs down I think I'm in for a sleepless night

I waited in all day to see if I heard any news from the Onc. about my scan. At 5:30 I knew the office was closed so I went to grab something to eat with the family.

At 6:00, Onc left a vague message. Usually if it is good news he says so. Now I'm scared. Urghh. I wish he had not left a message at all and just called tomorow.
__________________
DX 02/01/07
2.5 cm, Er/Pr-, Her2+++
18/20 Nodes
03/07 CT & Bone scan - Clear
AC x 4, Taxol x 4, Added Herceptin
Radiation until 09/07
Herceptin every 3 weeks until 06/08
01/10/08 local recurrence -IBC
01/28/08 CT & Brain MRI - clear
02/08 - Navelbine & Herceptin
05/08 -MRM
05/08 - Gemzar & Herceptin - didn't work
09/08 - Hyperthermia rads
03/09 - Tykerb/Xeloda
05/10 - Tram flap to fix wound
Faith in Him is offline   Reply With Quote
Old 09-17-2009, 09:44 PM   #2
Chelee
Senior Member
 
Chelee's Avatar
 
Join Date: Feb 2006
Location: Southern, CA
Posts: 2,511
Re: I think I'm in for a sleepless night

Oh how I feel for you. My 1st onc did almost that same thing to me once. Being stage IIIA with 5 positive nodes I was really concerned. He left me a message & it scared me to death. Normally he would say "all is well".

When I got into see him the following day...I told him how his called had me so stressed out I couldn't sleep. He then apologized and said he wasn't thinking. (Gee thanks!) He just said he wanted to go over my results in person due to some other benign issues...but all was fine. So as hard as it is...try not to panic yet. But shame on your onc for doing that to you. I hear this complaint far to often...you would think these onc's of all people would know better. I'd rather they leave NO message than to do what they did to you. Hang in there & I hope they get back to you 1st thing in the morning. Sending positive energy your way.

Chelee
__________________
DX: 12-20-05 - Stage IIIA, Her2/Neu, 3+++,Er & Pr weakly positive, 5 of 16 pos nodes.
Rt. MRM on 1-3-06 -- No Rads due to compromised lungs.
Chemo started 2-7-06 -- TCH - - Finished 6-12-06
Finished yr of wkly herceptin 3-19-07
3-15-07 Lt side prophylactic simple mastectomy. -- Ooph 4-05-07
9-21-09 PET/CT "Recurrence" to Rt. axllia, Rt. femur, ilium. Possible Sacrum & liver? Now stage IV.
9-28-09 Loading dose of Herceptin & started Zometa
9-29-09 Power Port Placement
10-24-09 Mass 6.4 x 4.7 cm on Rt. femur head.
11-19-09 RT. Femur surgery - Rod placed
12-7-09 Navelbine added to Herceptin/Zometa.
3-23-10 Ten days of rads to RT femur. Completed.
4-05-10 Quit Navelbine--Herceptin/Zometa alone.
5-4-10 Appt. with Dr. Slamon to see what is next? Waiting on FISH results from femur biopsy.
Results to FISH was unsuccessful--this happens less then 2% of the time.
7-7-10 Recurrence to RT axilla again. Back to UCLA for options.
Chelee is offline   Reply With Quote
Old 09-18-2009, 12:13 AM   #3
harrie
Senior Member
 
harrie's Avatar
 
Join Date: Mar 2007
Location: Hilo, Hawaii
Posts: 1,867
Re: I think I'm in for a sleepless night

I wish these medical offices would really appreciate the stress in waiting and worse yet getting an unclear message. If they would ONLY start out the left message by saying something like "the results are good, but please return the call so we can .....". Makes all the difference in the world.

Sometimes when I would be waiting for results and stressing out, I would try really hard to shift my thoughts to this: Until I hear otherwise, I am going to appreciate this moment of being considered clear and free.
__________________
*** MARYANNE *** aka HARRIECANARIE

1993: right side DCIS, lumpectomy, rads
1999: left side DCIS, lumpectomy, rads, tamoxifen

2006:
BRCA 2 positive
Stage I, invasive DCIS (6mm x 5mm)
Grade: intermediate
sentinal node biopsy: neg
HER2/neu amplified 4.7
ER+/PR+
TOPO II neg
Oncotype dx 20
Bilat mastectomy with DIEP flap reconstruction
oophorectomy

2007:
6 cycles TCH (taxotere, carboplatin, herceptin)
finished 1 yr herceptin 05/07
Arimidex, stopped after almost 1 yr
Femara

Last edited by harrie; 09-18-2009 at 12:16 AM..
harrie is offline   Reply With Quote
Old 09-18-2009, 03:29 AM   #4
Jackie07
Senior Member
 
Jackie07's Avatar
 
Join Date: Jan 2008
Location: "Love never fails."
Posts: 5,809
Re: I think I'm in for a sleepless night

Good advice, Harrie.

I think anxiety mostly comes from our past experience. I remember when my neurologist's secretary called me at work just after my CT scan (back in 1990 because of my chronic and insertion headaches), my boss got all hyped up: "You just had your CT scan, and they called you right away for an appointment tomorrow. You need to ask them what's going on."

Of course, the secretary would not tell me anything. So we waited for another 24 hours and saw the doctor in the afternoon the next day. And I was actually quite happy to learn about my huge brain tumor - it proved that I was not 'lazy' as most of my family members and my coaches had thought about me sometimes. And I certainly did not need a referral to a psychiatrist as my first family doctor had suggested (We switched to another doctor and pressed for more exams and finally found the tumor 7 months later.)

After being excited for a couple of days - showing my CT scans around and looking up medical journals on my rare type of brain tumor - I finally experienced a few sleepless nights, mainly because I started to imagine how the surgical knife's going to cut into my scalp...

So, when I was told about having breast cancer and needed to have lumpectomy (and four years later, I opted for bilateral mastectomy when the cancer recurred), I took the surgeries in stride. Also, the second time I had chemo, I was actually working full-time...

Knowlege is power. Even though sometimes too much knowlege causes us unecessary worries, in the end it is often knowlege that eases our fears.

I am keeping my fingers crossed for you.
__________________
Jackie07
http://www.kevinmd.com/blog/2011/06/doctors-letter-patient-newly-diagnosed-cancer.html
http://www.asco.org/ASCOv2/MultiMedi...=114&trackID=2

NICU 4.4 LB
Erythema Nodosum 85
Life-long Central Neurocytoma 4x5x6.5 cm 23 hrs 62090 semi-coma 10 d PT OT ST 30 d
3 Infertility tmts 99 > 3 u. fibroids > Pills
CN 3 GKRS 52301
IDC 1.2 cm Her2 +++ ER 5% R. Lmptmy SLNB+1 71703 6 FEC 33 R Tamoxifen
Recc IIB 2.5 cm Bi-L Mast 61407 2/9 nds PET
6 TCH Cellulitis - Lymphedema - compression sleeve & glove
H w x 4 MUGA 51 D, J 49 M
Diastasis recti
Tamoxifen B. scan
Irrtbl bowel 1'09
Colonoscopy 313
BRCA1 V1247I
hptc hemangioma
Vertigo
GI - > yogurt
hysterectomy/oophorectomy 011410
Exemestane 25 mg tab 102912 ~ 101016 stopped due to r. hip/l.thigh pain after long walk
DEXA 1/13
1-2016 lesions in liver largest 9mm & 1.3 cm onco. says not cancer.
3-11 Appendectomy - visually O.K., a lot of puss. Final path result - not cancer.
Start Vitamin D3 and Calcium supplement (600mg x2)
10-10 Stopped Exemestane due to r. hip/l.thigh pain OKed by Onco 11-08-2016
7-23-2018 9 mm groundglass nodule within the right lower lobe with indolent behavior. Due to possible adenocarcinoma, Recommend annual surveilence.
7-10-2019 CT to check lung nodule.
1-10-2020 8mm stable nodule on R Lung, two 6mm new ones on L Lung, a possible lymph node involvement in inter fissule.
"I WANT TO BE AN OUTRAGEOUS OLD WOMAN WHO NEVER GETS CALLED AN OLD LADY. I WANT TO GET SHARP EDGED & EARTH COLORED, TILL I FADE AWAY FROM PURE JOY." Irene from Tampa

Advocacy is a passion .. not a pastime - Joe

Last edited by Jackie07; 09-20-2009 at 03:24 AM..
Jackie07 is offline   Reply With Quote
Old 09-18-2009, 03:58 AM   #5
Pam P
Senior Member
 
Pam P's Avatar
 
Join Date: Sep 2005
Location: MN
Posts: 731
Re: I think I'm in for a sleepless night

I agree with Harrie's advice.... hard as it is to do sometimes. When we're worried our mind tends to interpret everything to the bad news... it could be nothing at all to worry about. I hope you are able to get the full report from your onc. early today. Let us know when you do. (I hope you got a little sleep!)
__________________
Pam
6/01 IBC er+ her2+stage IIIb; mastecomy
7/01 AC, taxol; radiation
2/02 tamoxifen
9/02 stage IV bone mets femara
1/03 taxotere/herceptin/aredia
6/03 herceptin, aredia & faslodex
1/04 navelbine, herceptin, aredia
2/05 herceptin/aredia
7/05 xeloda/herceptin/aredia
3/07 xeloda/tykerb/aredia
5/08 taxol/avastin/aredia
2/09 gemzar/herceptin/zometa
7/09 Taxol/Carbo/Herceptin, zometa
10/09 navelbine/herceptin & zometa
2/10 herceptin & tykerb & zometa
4/10 add xeloda &aromasin
10/10 dx with dermatomyiositis triggered by cancer
11/10 restart herceptin, tykerb, zometa
12/10 surgery-place rod in R femur to stabilize bone
1/11 radiation to R femur - 20 tx
2/11 2nd surgery - rod in Left femur
2/11 tx eribulen -- suspended dx brain mets
3/11 brain mets wbr 20 tx
4/11 halaven; discontine 8/11 not working
8/11 radiation to left femur 20 tx'
8-9/11 rad to lower spine
9/11 abraxane/herceptin/zometa
9/12 xeloda/herceptin/zometa
12/12 ablation of liver
Pam P is offline   Reply With Quote
Old 09-18-2009, 04:10 AM   #6
Lien
Senior Member
 
Lien's Avatar
 
Join Date: May 2006
Location: Haarlem, the Netherlands
Posts: 835
Re: I think I'm in for a sleepless night

Oh that's so stupid! Even if it's probably nothing (he wouldn't have left a message if the news was really bad, would he?) it scares the heck out of us.

I once had a pap smear and was called back. The appointment wasn't until 10 days later and all that time I was so scared (I was 22 at the time). Turned out there weren't enough cells in the specimen, so they had to redo the test. I'd had an HPV infection (thank you boyfriend for sleeping with someone else, unprotected) and was told that my risk for cervical cancer was high. I was hopping mad afterwards. Insensitive idiots!

Well, let's hope that your onc was just stupid or thinking about something else and never thought you could be worried because there's nothing seriously wrong with you.

Hugs

Jacqueline
__________________
Diagnosed age 44, January 2004, 0.7 cm IDC & DCIS. Stage 1, grade 3, ER/PR pos. HER2 pos. clear margins, no nodes. SNB. 35 rads. On Zoladex and Armidex since Dec. 2004. Stopped Zoladex/Arimidex sept 2009 Still taking mistletoe shots (CAM therapy) Doing fine.
Lien is offline   Reply With Quote
Old 09-18-2009, 05:07 AM   #7
schoolteacher
Senior Member
 
Join Date: Feb 2008
Location: Georgia
Posts: 1,486
Re: I think I'm in for a sleepless night

Thinking of you. Let us know when you hear from the Oncologists.

Amelia
schoolteacher is offline   Reply With Quote
Old 09-18-2009, 05:13 AM   #8
Mary Anne in TX
Senior Member
 
Mary Anne in TX's Avatar
 
Join Date: Jun 2006
Location: San Antonio, TX
Posts: 2,357
Re: I think I'm in for a sleepless night

Hang in there girl! And please let us know what he says!
I'm praying for good news and peace of mind....but I totally understand the anxiety! ma
__________________
MA in TX.
Grateful for each and every day....

Diag. 12/05 at age 60
Stage II, Grade 3, 4.5 cm primary tumor
ER/PR- Her2 +3 strongly positive
Her2 by FISH 7.7 amplified
vascular invasion
Ki67 20% borderline
Jan - March '06 Taxotere/Adriamycin X 3 to try to shrink tumor - it grew
April '06 Rt Modified Radical Mas, 7 of 9 nodes positive
April - Aug. '06 Herceptin/Taxol/Carboplatin X 8 (dose dense)
Sept - Dec. '06 Navelbine/Herceptin x 8 (dose dense)
Radiation & Herceptin Jan. 22 - March 1, 2007
Finished Herceptin Dec. 10 '08! One extra year.
Port removed August, 2012.
8 1/2 years since diagnosis! 5 1/2 Years NED!
Mary Anne in TX is offline   Reply With Quote
Old 09-18-2009, 08:58 AM   #9
Faith in Him
Senior Member
 
Faith in Him's Avatar
 
Join Date: Jul 2007
Location: Northern California
Posts: 764
Re: I think I'm in for a sleepless night

Thanks, girls. Funny enough, I did get some sleep. I just got to the point where I thought it is what it is. I'll deal with that tomorrow.
__________________
DX 02/01/07
2.5 cm, Er/Pr-, Her2+++
18/20 Nodes
03/07 CT & Bone scan - Clear
AC x 4, Taxol x 4, Added Herceptin
Radiation until 09/07
Herceptin every 3 weeks until 06/08
01/10/08 local recurrence -IBC
01/28/08 CT & Brain MRI - clear
02/08 - Navelbine & Herceptin
05/08 -MRM
05/08 - Gemzar & Herceptin - didn't work
09/08 - Hyperthermia rads
03/09 - Tykerb/Xeloda
05/10 - Tram flap to fix wound
Faith in Him is offline   Reply With Quote
Old 09-18-2009, 03:01 PM   #10
harrie
Senior Member
 
harrie's Avatar
 
Join Date: Mar 2007
Location: Hilo, Hawaii
Posts: 1,867
Re: I think I'm in for a sleepless night

Thats the way to go Faith. Why waste a good day being concerned when there may or may not be a valid to do so later. Plus remember, every good day is a precious day and not to go unappreciated.
__________________
*** MARYANNE *** aka HARRIECANARIE

1993: right side DCIS, lumpectomy, rads
1999: left side DCIS, lumpectomy, rads, tamoxifen

2006:
BRCA 2 positive
Stage I, invasive DCIS (6mm x 5mm)
Grade: intermediate
sentinal node biopsy: neg
HER2/neu amplified 4.7
ER+/PR+
TOPO II neg
Oncotype dx 20
Bilat mastectomy with DIEP flap reconstruction
oophorectomy

2007:
6 cycles TCH (taxotere, carboplatin, herceptin)
finished 1 yr herceptin 05/07
Arimidex, stopped after almost 1 yr
Femara
harrie is offline   Reply With Quote
Old 09-21-2009, 08:47 AM   #11
juanita
Senior Member
 
juanita's Avatar
 
Join Date: Dec 2005
Location: indianapolis, indiana
Posts: 1,544
Re: I think I'm in for a sleepless night

i think doctors need to be more sensitive to what their patients might be feeling and not do some of the things they do like this message.
__________________
dxd 9-04, lumpectomy,
st 1, gr 3, er,pr-, her2 +,
2 tac,33 rads,6 cmf
1 yr herceptin,
juanita is offline   Reply With Quote
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off

Forum Jump


All times are GMT -7. The time now is 11:30 PM.


Powered by vBulletin® Version 3.8.7
Copyright ©2000 - 2026, vBulletin Solutions, Inc.
Copyright HER2 Support Group 2007 - 2021
free webpage hit counter