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Old 09-17-2008, 05:34 PM   #1
rebecca0623
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Join Date: Jul 2008
Location: Murfreesboro, Tennessee
Posts: 48
Smile PET scan and too much neupogen

Pet results are clear (fatty liver aside) and my blood test today had my white blood cells up to 47 from the high of 14 and low of 1.4. Hooray, get to lower neupogen shots to 3 from 5 shots between treatments! For anyone who is going to get these shots, toradol worked for me for bone pain but it was very painful not knowing that for the first 3 shots. I do wish I had been better informed on these shots. Met some great HER2 women in chemo and have recommended this group to them. Thanks again for being here!
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Dx June 2008, Age 44
Mother Dx age 54, deceased
1.2 cm tumor right breast, grade 3, ER 4+; PR 3+
HER2 +, invasive ductal carcinoma
Quadrantectomy right on 7/30/08
Path report, all 3 nodes taken were clear!!!!!!
Lymphatic/vascular invasion and sent out BRCA testing
Port in on 9/2/08. Chemo began 9/3/08. TCH (MUGA wrong - echocardiogram says 65% cardiac MRI 59% 9/10/98 elevated liver enzymes, PET scan 9/16/08 all clear.
TC ended 12/17/08
Port blood clot and hosp. 1/2/09
radiation begins 1/8/09


BRCA testing done - results NEGATIVE!

cardiologist said go back to coreg as it helps counteract heart effects of herceptin and slowly increase dosage - now 40mg daily.
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Old 09-17-2008, 07:21 PM   #2
sassy
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Location: Mountains of Virginia
Posts: 2,267
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Rebecca,

Congrats on your scan results. Also glad you get to take fewer shots. Those SE's are not fun.

Hope all continues well.....
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Rhonda (Sassy)
dx age 45
DX 2/15/05 Stage IIb (at surgery)restaged IIIa
Left mast .9cm tumor 5 of 14 nodes
Triple Positive
4 DD A/C
12 Taxol/Herceptin
33Rads
Strange infect mast site one year aft surg, hosp 1 wk
Herceptin for total of 18 months
Lupron Monthly 4 yrs
Neurontin for aches, pains and hot flashes(It works!)
Ovaries removed 11/09 stop Lupron and Neurontin
Arimidex 6 yrs (tried Femara, no SE improvement)
Tried Exemestane-hips got so bad could hardly walk
Back to Arimidex for year seven
Zometa 2X Annual for 7years, Lasix
Stop Arimidex 5/13
Stop Zometa 7/13-Bi-lateral Stress Fractures in Femurs from Zometa
5/14 Start Tamoxifen
3/15 Stem cell transplant to stimulate femur bone growth/healing
5/15 Complete fracture of right femur/Titanium rods both femurs
9/16 Start Evista stopTamoxifen
3/17 Stop Evista--unwelcome side effects!
NED and no meds.......
14YEARS NED!
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