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Old 02-12-2008, 09:58 PM   #1
Sherryg683
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High Muga

I saw my Oncologist today and he gave me the scores to my Muga that I had done a week ago. He was shocked and said my score EF score was 85. He said that my heart was in good enough shape to go run a marathon. He thought that with all the chemo and me being on Herceptin weekly for the last 2 years, it wouldn't be that high. I took this as being a positive thing, then I got online and it said the normal range was 50 - 70, and that anything higher might indicate a heart problem. such as Hypertrophic cardiomyopathy. This is the disease that kills some of the young athletes.....what the HECK!!! I exercise a lot and do a lot of cardio and would just prefer to think my hearts in good shape, my Oncologist seemed impressed. Have any of you had a high MUGA and know more about this..sherryg
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Sherry

Diagnosed: December , 2005 at age 44
13+ positive lymph nodes
Stage IV , Her2+, 2 small mets to lungsChemo Started: Jan, 2006
4 months Taxotere, Xeloda, Hercepin
NED since April 2006!!
36 Rads to follow with weekly Herceptin indefinately
8 years NED now
Scans every year

Life is not about avoiding the thunderstorms, it's about learning to dance in the rain!
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Old 02-13-2008, 09:24 PM   #2
Lolly
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Sherry, all I know is that you're right up there with Lance Armstrong, he's in the mid 80's also! You may have just been born with a large heart, some people are. The fact that you exercise and are in good shape is great, but if you are worried you should ask to see a cardiologist for an opinion.
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Sept.'99 - Dx.Stage IIIB, IDC ER/PR-, HER2+++ by IHC, confirmed '04 by FISH. Left MRM, AC x's 4, Taxol x's 4, 33 Rads, finishing Tx May 2000. Jan.'01 - local/regional recurrence, Stage IV. Herceptin/Navelbine weekly till NED August 2001, then maintenance Herceptin. Right Mast. April 2002. Local/Regional recurrence April '04, Herceptin plus/minus chemo until May '07. Gemzar added from Feb.'07-April '07; Tykerb/Abraxane until August '07, back on Herceptin plus Taxotere and Xeloda Sept. '07. Stopped T/X Nov. '07, stopped Herceptin Dec. '07, started Avastin/Taxol/Carboplatin Dec. '07. Progression in chest skin, stopped TAC March '03, started radiation.

Herceptin has served as the "Backbone" of my treatment strategy for over 6 years, giving me great quality of life. In 2005, I was privileged to participate in the University of Washington/Seattle HER2 Vaccine Trial.
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