 |
|
01-01-2008, 11:23 AM
|
#21
|
|
Senior Member
Join Date: Dec 2005
Posts: 98
|
Lani, my email is HavahJ@aol.com - much easier communication.
|
|
|
01-01-2008, 01:31 PM
|
#22
|
|
Senior Member
Join Date: Feb 2005
Location: LI, NY
Posts: 660
|
Geez - I stay away from the boards for a few days, and everything falls apart. What are you talking about??? Just because you have mets in the liver DOESN'T mean your going to die in 4 months Havahj!! If this is what you doctor is telling you, you better get a new doctor right away!!!!!!!!!!! I had mets in my liver 4 YEARS ago and I am still here. I haven't had mets to the bones, but I've had mets to the lungs (twice now) and leukemia. Everyone of my doctors has learned that you never tell me I'm going to die!! You need to teach your doctors a thing or two. Your looking for answers that NO ONE can give you. Articles can give you statistics, but they are based on information that is several years old. Come on girl, you've been around this board long enough to know this. And treatments are changing every day. I took carboplaten, taxatere, herceptin and femara. Within three months, the lesions in my liver were half the size and in six months they were gone! This past summer, my liver rejected my bone marrow transplant. Within a few weeks of treatment, my liver did a 360, and now I have better liver functions than many of my friends that don't have cancer. The liver is an amazing organ and can rejuvenate itself. Please don't give up. It is a new year and a new day. Time to wipe your self off and fight the good fight...And yes, I am yelling/preaching at you (with love).
__________________
Maryann
Stage IV Inflammatory BC 1/00
Mod Rad Mastectomy 24nod/5+
Adriomycin Cytoxin Taxol
Tamoxifen 4 1/2 yrs
Radiation - 32 x
Metastatic BC lung/liver 10/04
thorocentesis 2x - pleurodesis
Herceptin Taxatiere Carbo
Femera/Lupron
BC NED 4/05
chemo induced Acute Myeloid Leukemia 5/06
Induction/consolidation chemo
bone marrow transplant - 11/3/06
Severe Host vs Graft Disease of liver
BC mets to lung 11/07
Fasoladex Herceptin Zometa Xeloda
GVHD/Iron overload to liver
Avascular Necrosis/morphine pump 10/10
metastatic brain tumor
steriotactic radiosurgery
|
|
|
01-01-2008, 03:24 PM
|
#23
|
|
Senior Member
Join Date: Oct 2005
Location: LAND OF YES!
w/home in Boca Raton, Florida
Orig from L.I., N.Y.
Ever hovering IN THE NOW...
Posts: 1,904
|
Havah!
Okay, Havah! I had extensive liver mets in Aug of '98. I was given Taxotere and Herceptin and I was NED by the end of May '99. I remain STABLE, and still taking H ev 3 wks! So, please don't give yourself a sentence! I did suspect I was dying, feeling the effects of T on my body, bringing me to my knees, but I reminded myself of what the T (& H) must be doing to my cancer cells! I picked myself up off the floor and fought w/everything I had, my mind (and thoughts), my body (weakened but under command to a good degree) and my Spirit (which is capable of bringing miraculous results to you!). I prayed, I meditated, I took supplements, I rescripted my inner dialogue and mental imagery. I decided to see myself far into the future in vivid detail. I lived AS IF what I wanted was already a reality! And, consequently, I found myself living with a kind of joy and peace, KNOWING with all my heart and Soul that I was calling my desired goal to me!
You may feel that you are deep in the woods, but you are not lost! Don't even think that! YOUR BODY HEARS EVERYTHING YOU THINK, OR WHISPER, AND TAKES IT PERSONALLY. Your body does as your mind commands. Don't forget that! It's a mighty tool you have at your disposal! Fight, Havah, fight! And yes, I, like Maryann, am yelling... With love...
Andi
__________________
Andi BB
'95 post-meno dx Invasive LOBULAR w/9cm tumor! YIKES + 2/21 nodes. Clear mammo 10 mnths earlier. Mastec/tram flap reconst/PORT/8 mnths chemo (4Adria/8CMF). Borderline ER/PR. Tamoxifen 2 yrs. Felt BLESSED. I could walk and talk, feed and bathe myself! I KNEW I would survive...
'98 -- multiple mets to liver. HER2+ 80%. ER/PR- Raging, highly aggressive tumors spreading fast. New PORT. 9 mnths Taxotere Fought fire w/fire! Pronounced in cautious remission 5/99. Taxotere weekly for 6 wks, 2 wks off -- for 9 mnths. TALK ABOUT GRUELING! (I believe they've altered that protocol since those days -- sure hope so!!)
+ good old Vit H wkly for 1st 3 yrs, then triple dosage ev 3 wks for 7 yrs more... The "easy" chemo, right?! Not a walk in the park, but not a freight train coming at 'ya either...
Added Herceptin Nov '98 (6 wks after FDA fast-tracked it for met bc). Stayed w/Vit H till July '08! Now I AM FREE! Humbly and eternally grateful for this life-saving drug! NED since '99 and planning on keeping it that way. To hell w/poor prognosis and nasty stats! STOPPED VIT H JULY '08...! REMAIN STABLE... Eternally grateful...Yes is a world & in this world of yes live (skillfully curled) all worlds ... (e e cummings) EVERY DAY I BEAT MY PREVIOUS RECORD FOR # OF CONSECUTIVE DAYS I'VE STAYED ALIVE. Smile KNOWING you too can be a miracle. Up to me and God now...
|
|
|
01-01-2008, 07:24 PM
|
#24
|
|
Senior Member
Join Date: Nov 2007
Location: Connecticut
Posts: 2,077
|
Hi Havah!
Hey Sweetheart! I know you've been hit with an awful lot of really bad news lately, but please re-read the posts of these wonderful women. Take a deep breath and try to relax in whatever way you normally relax. These brave women have been right where you are right now and they will give you good counsel. Nobody can tell you that you have 4 months. There are so many treatment options out there. If your liver mets are only in one lobe or localized, liver resection is an option. Please try to get a second or third opinion. Sometimes, if you keep asking an onc. for a prognosis, all they tell you are averages and statistics. There are so many different variables and controllables in your situation. Each person is unique. You must fight the good fight. Do not despair. Love to you, Bill
|
|
|
01-01-2008, 07:56 PM
|
#25
|
|
Senior Member
Join Date: Dec 2005
Posts: 98
|
Liver Mets
Hi Bill, I have 15 liver mets in both lobes that I got in 1 month. In that same month my mrker went up 14 points. Before this I had one skull bone met for 2 and a half years. That was the only met. What do you think of the situation? I am starting chemo Monday, but I don't understand how this happened so fast. What does that mean? My liver function is norma and no symptoms. If I don't respond to chemo, am I just going to die? I 'm scared to death. This was totally unexpected at this time. I still have staples in my head from the last surgery! Doesn't this sudden windfall of liver mets seem weird to you? Write me if you can, HavahJ@aol.com. Sincerely, Jan
|
|
|
01-01-2008, 08:05 PM
|
#26
|
|
Senior Member
Join Date: Sep 2005
Posts: 232
|
If I am correct, I think Gina had extensive mets to the liver back in 1999 and as far as I know she is doing well.
Karen
|
|
|
01-02-2008, 03:33 AM
|
#27
|
|
Senior Member
Join Date: Sep 2005
Location: Grand Rapids, MI
Posts: 1,516
|
I attached the post and sent it to Gina...
as she is quite busy and doesn't visit the board as much, BUT keeps up to date on all the latest.
Rhonda
__________________
Rhonda
Dx 2/1/05, Stage 1, 0 nodes, Grade 3, ER/PR-, HER2+ (3.16 Fish)
2/7/05, Partial Mastectomy
5/18/05 Finished 6 rounds of dose dense TEC (Taxotere, Epirubicin and Cytoxan)
8/1/05 Finished 33 rads
8/18/05 Started Herceptin, every 3 weeks for a year (last one 8/10/06)
2/1/13...8 year Cancerversary and I am "perfect" (at least where cancer is concerned;)
" And in the end, it's not the years in your life that count. It's the life in your years."- Abraham Lincoln
|
|
|
Posting Rules
|
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts
HTML code is Off
|
|
|
All times are GMT -7. The time now is 10:10 AM.
|