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Old 04-20-2007, 04:22 PM   #1
Caroline UK
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Question Any tips on coping with hot flashes?

Me again!
I was made post-menopausal by chemo, and I've been on Arimidex for around 6 weeks. At first I had a lot of hot flashes. I thought I couldn't bear it if this is how it was going to be from now on. But thank goodness, they eventually came less often. I even had whole days when I wouldn't get one at all. What a relief. They do come back sometimes, for a few times a day, a few days at a time.

A good health food shop nearby advised me to try sage tablets or drops, as did my oncologist. The trouble was, I kept burping sage all day and that was worse than the hot flashes!
I've heard of black cohosh being used - has anyone tried this?
Also advised to cut down on drinking tea, which helps.
My oncologist said she could try me on a low dose of an anti-depressant, which has been shown to help reduce hot flashes, but I'd rather not unless I get desperate.

Are there any foods I should try cutting down/out? I don't drink alcohol, well the occasional glass of red wine for health purposes you understand, but it gives me a headache and makes me feel sick after 2 glasses, so I rarely partake. I don't eat much spicy food either.
Has anyone used homoeopathy, and did it help?

Caroline
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Caroline
Diag. March 10th 2006, aged 46.
Invasive ductal carcinoma, 2cm + multifocal. Stage 2, Grade 3
HER2+++, ER+/PR+
Right mast. May 2006. 6 of 20 nodes positive
FEC x 4, taxotere x 4; port implanted after 6 cycles
Rads x 25
1 year of Herceptin ended Nov 07.
Arimidex 5 years

Considering reconstruction, maybe soon...
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Old 04-21-2007, 06:55 AM   #2
Mgarr
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Good morning Caroline. I just have a couple experiences to offer. First, I tried black cohosh tea which did not have any effect on hot flashes then I was advised by my hospital nutritionist not to use it without speaking to the doctor.

Second, I recently underwent total hip replacement and needed to be placed on an antidepressant (my case was Lexapro) my hotflashes had minimized but the doc. warned me Lexapro will increase them and the night sweats. He was correct on both accounts.

Lastly, for night time sweats invest in some wicking pajamas.

Best of luck.

Mary
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Mary


Diagnosed 11/04 @39yrs. young
Stage IIB
2.5 cm, ER/PR- Her+++, grade 3
Partial Mast., 1/3 pos. node
1/05 full node dissection
4 A/C 4 Taxol DD, Herceptin 1 yr.
30X rads.
BRCA Negative
NED

Hope is the thing with feathers
That perches in the soul,
And sings the tune without the words,
And never stops at all -Emily Dickinson

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Old 04-21-2007, 11:15 PM   #3
hutchibk
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My only suggestion to consider (although I know some docs and patients might still consider it controversial) is using small doses of vaginal Estrace cream (estrogen cream). I have used it for over a year to ward off re-curring urinary tract infections (caused by unbalanced pH levels and dry tissue in the 'lady parts' area, due to lack of estrogen) - And it has the added benefit of moderating hot flashes. My doc says that it is not enough estrogen (1%) to do harm or have a systemic effect. I swear by it.
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Brenda

NOV 2012 - 9 yr anniversary
JULY 2012 - 7 yr anniversary stage IV (of 50...)

Nov'03~ dX stage 2B
Dec'03~
Rt side mastectomy, Her2+, ER/PR+, 10 nodes out, one node positive
Jan'04~
Taxotere/Adria/Cytoxan x 6, NED, no Rads, Tamox. 1 year, Arimadex 3 mo., NED 14 mo.
Sept'05~
micro mets lungs/chest nodes/underarm node, Switched to Aromasin, T/C/H x 7, NED 6 months - Herceptin only
Aug'06~
micro mets chest nodes, & bone spot @ C3 neck, Added Taxol to Herceptin
Feb'07~ Genetic testing, BRCA 1&2 neg

Apr'07~
MRI - two 9mm brain mets & 5 punctates, new left chest met, & small increase of bone spot C3 neck, Stopped Aromasin
May'07~
Started Tykerb/Xeloda, no WBR for now
June'07~
MRI - stable brain mets, no new mets, 9mm spots less enhanced, CA15.3 down 45.5 to 9.3 in 10 wks, Ty/Xel working magic!
Aug'07~
MRI - brain mets shrunk half, NO NEW BRAIN METS!!, TMs stable @ 9.2
Oct'07~
PET/CT & MRI show NED
Apr'08~
scans still show NED in the head, small bone spot on right iliac crest (rear pelvic bone)
Sept'08~
MRI shows activity in brain mets, completed 5 fractions/5 consecutive days of IMRT to zap the pesky buggers
Oct'08~
dropped Xeloda, switched to tri-weekly Herceptin in combo with Tykerb, extend to tri-monthly Zometa infusion
Dec'08~
Brain MRI- 4 spots reduced to punctate size, large spot shrunk by 3mm, CT of torso clear/pelvis spot stable
June'09~
new 3-4mm left cerrebellar spot zapped with IMRT targeted rads
Sept'09~
new 6mm & 1 cm spots in pituitary/optic chiasm area. Rx= 25 days of 3D conformal fractionated targeted IMRT to the tumors.
Oct'09~
25 days of low dose 3D conformal fractionated targeted IMRT to the bone mets spot on rt. iliac crest that have been watching for 2 years. Added daily Aromasin back into treatment regimen.
Apr'10~ Brain MRI clear! But, see new small spot on adrenal gland. Change from Aromasin back to Tamoxifen.
June'10~ Tumor markers (CA15.3) dropped from 37 to 23 after one month on Tamoxifen. Continue to monitor adrenal gland spot. Remain on Tykerb/Herceptin/Tamoxifen.
Nov'10~ Radiate positive mediastinal node that was pressing on recurrent laryngeal nerve, causing paralyzed larynx and a funny voice.
Jan'11~ MRI shows possible activity or perhaps just scar tissue/necrotic increase on 3 previously treated brain spots and a pituitary spot. 5 days of IMRT on 4 spots.
Feb'11~ Enrolled in T-DM1 EAP in Denver, first treatment March 25, 2011.
Mar'11~ Finally started T-DM1 EAP in Denver at Rocky Mountain Cancer Center/Rose on Mar. 25... hallelujah.

"I would rather be anecdotally alive than statistically dead."
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Old 04-22-2007, 02:46 AM   #4
jhandley
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Smile natural progesterone cream

I have been using natural progesterone cream since not long after dx. I did a saliva test and found I was low in progesterone. Women who are low have a higher incidence of BC. Dr John Lee wrote a book "What your doctor may not tell you a bout breast cancer" in which he discusses the hormonal side of things including studies that show that natural progesterone inhibits cancer growth. I have also read somewhere that natural progesterone switches on the p53 suppressor gene that is damaged in some BC.

Anyway it is brilliant for hot flashes, basically you rub it on each evening and the idea is to replicate physiological levels of the hormone. (the strength is 1.6 % and the dose is 1/4 to 1/8 tspn)..

It also helps you sleep.

Note: It is not a progestin which has an altered chemical structure and therefore has different effects.
Jackie
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Old 04-22-2007, 06:33 AM   #5
doh2pa
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Last week I went to an accupuncturist to see if she could relieve my peripheral neuropathy. Since it was the first visit we had a long talk about my health in general and we talked about the hot flashes. She recommended drinking a tea twice a day made from Astralagus root. She gave me some samples and I have been drinking it over the last week. My hot flashes are definitely diminished. Last night I had a glass of red wine with dinner (and I usually pay for that with multiple hot flashes in bed that night), but I awoke this morning realizing I had not kicked the sheets off once last night. I will see my onc this week and make sure it's okay to take but I will be sorely dissapointed if he says to discontinue.

Donna
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Donna
Diagnosed 2/04 - Invasive ductal - no clean margins
node negative - er+pr+, her2++
Mastectomy 4/04 - 4 rounds AC
9/05 - mets to liver treated with carbo/ixabipelone/herceptin
3/06 - complete remission
9/06 - new liver mets, starting Taxotere/Herceptin
1/07 -Liver mets stable, staying on Herceptin
5/07 - Liver, lung progression - starting T/X
12/07 - Liver, lung progression - starting weekly Navilbene/Herceptin
4/08 - Liver progression - started Abraxane, Carbo, Tykerb and Herceptin
7/08 - Liver Progression - started Gemzar, Avastin and Tykerb
10/08 - Liver progression - starting Doxil
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