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Old 04-06-2007, 06:33 PM   #1
LindaC
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Location: Live in New York Monday through Thursday.Friday,Saturday,&Sunday Live in Cape May,New Jersey.
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How Long??

Can someone tell me how long I will be on chemo??I am on my 15 treament, my onc tells me we will go one month at a time.I am on taxol,herceptin and zometa once a month.Breast,lymph,liver mets and bone mets.Started treament dec.14,06 no surgury.
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Old 04-06-2007, 09:16 PM   #2
Lolly
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Linda, no one can say for sure how you will respond to the treatment, so that's why your onc say's one month at a time. If you get the mets under control, it's possible you will be able to take "chemo breaks", as some of us have done.
I've been on Herceptin since 2001, with various chemo's added from time to time to keep things stable. I'm currently back "on" for more mets in the lymphs.
I hope you begin to see improvement in your mets, and please keep us posted on your progress.

<3 Lolly
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Sept.'99 - Dx.Stage IIIB, IDC ER/PR-, HER2+++ by IHC, confirmed '04 by FISH. Left MRM, AC x's 4, Taxol x's 4, 33 Rads, finishing Tx May 2000. Jan.'01 - local/regional recurrence, Stage IV. Herceptin/Navelbine weekly till NED August 2001, then maintenance Herceptin. Right Mast. April 2002. Local/Regional recurrence April '04, Herceptin plus/minus chemo until May '07. Gemzar added from Feb.'07-April '07; Tykerb/Abraxane until August '07, back on Herceptin plus Taxotere and Xeloda Sept. '07. Stopped T/X Nov. '07, stopped Herceptin Dec. '07, started Avastin/Taxol/Carboplatin Dec. '07. Progression in chest skin, stopped TAC March '03, started radiation.

Herceptin has served as the "Backbone" of my treatment strategy for over 6 years, giving me great quality of life. In 2005, I was privileged to participate in the University of Washington/Seattle HER2 Vaccine Trial.
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Old 04-07-2007, 06:47 AM   #3
vickie h
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Dear Linda, I have been on chemo (with a few weeks break at a time) for over 3 years now. I have IBC and they are treating it like any chronic disease. I will probably be on some form of chemo/or Tyrosine Kinase Inhibitor/ monoclonal antibody, etc for the rest of my life. But I have a great life and I am blessed to be here, so I look at it all as a gift. My life is so filled with wonder each and every day and I plan to stay here much longer and much happier. You may have a shorter time or even go into remission, depending on how your chemo works with your cells. Best of luck to you. Love, Vickie
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Old 04-07-2007, 09:27 AM   #4
chrisy
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Dear Linda,

HOW LONG does depend on how you respond to treatment. When I started chemo for extensive liver mets, the plan was 6 cycles (about 6 months). Followed by Herceptin alone. I had 2 oncs, one of had a slightly different take which was "2 cycles past best response". In my case, the 6 cycles was perfect.

Once you get to NED or stable, you should be able to get a chemo holiday, which is a good thing as it allows your body to recover and muster your resources so you have them for the next battle.

Not knowing is hard, and unfortunately this disease is full of "not knowing". You just have to get your head around that and find a way to live with the uncertainty - and you will.

At first I thought the more chemo the better, now I'm a believer in as little chemo as necessary!

Take care
Chris
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June 2002 extensive hi grade DCIS (pre-cancer-stage 0, clean sentinal node) Mastectomy/implant - no chemo, rads. "cured?"
9/2004 Diag: Stage IV extensive liver mets (!) ER/PR- Her2+++
10/04-3/05 Weekly Taxol/Carboplatin/Herceptin , complete response!
04/05 - 4/07 Herception every 3 wks, Continue NED
04/07 - recurrence to liver - 2 spots, starting tykerb/avastin trial
06/07 8/07 10/07 Scans show stable, continue on Tykerb/Avastin
01/08 Progression in liver
02/08 Begin (TDM1) trial
08/08 NED! It's Working! Continue on TDM1
02/09 Continue NED
02/10 Continue NED. 5/10 9/10 Scans NED 10/10 Scans NED
12/10 Scans not clear....4/11 Scans suggest progression 6/11 progression confirmed in liver
07/11 - 11/11 Herceptin/Xeloda -not working:(
12/11 Begin MM302 Phase I trial - bust:(
03/12 3rd times the charm? AKT trial

5/12 Scan shows reduction! 7/12 More reduction!!!!
8/12 Whoops...progression...trying for Perjeta/Herceptin (plus some more nasty chemo!)
9/12 Start Perjeta/Herceptin, chemo on hold due to infection/wound in leg, added on cycle 2 &3
11/12 Poops! progression in liver, Stop Perjeta/Taxo/Herc
11/12 Navelbine/Herce[ptin - try for a 3 cycles, no go.
2/13 Gemzar/Carbo/Herceptin - no go.
3/13 TACE procedure
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