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08-23-2006, 04:28 PM
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#1
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Senior Member
Join Date: Sep 2005
Location: Vancouver, Canada
Posts: 329
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Sad news about Lisa (CLISA)
I sent this to Joe in July but I think it was lost during that period our site had problems.
I received this e-mail form her husband John. You have seen her posts under CLISA. She was so young and full of life. It's so sad and heart breaking:
"I am not sure if you know or not but Lisa passed away on July 6th. She was at home and comfortable. No pain. Her family and close friends were by her side. I am thankful that she met you and took your advice on seeing Dr. Klimo. We had 6 more months together and Lisa was able to do some traveling that she wanted to do. I am sure that she has told you all about these ventures. The most recent was a week before she died, she went to Kelowna with her girlfriends. She had a blast. I love her lots and I am sure glad that I met you at the chemo sessions. Take care and keep in touch. I will check in on this message board from time to time. Most of all… Thank you…."
http://www.legacy.com/can-vancouver/...sonID=18378475
PS – attached is the webpage that Lisa’s Obituary is on and a pic of the obit that was in the paper.[/left]
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08-23-2006, 05:43 PM
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#2
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Senior Member
Join Date: Sep 2005
Location: Spokane/Warden, WA
Posts: 67
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Thank you
for making sure we did not lose sight of this story amidst all the others - Clisa, and family are now on my prayer list.
dee
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08-23-2006, 05:49 PM
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#3
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Senior Member
Join Date: Sep 2005
Location: Ontario, Canada
Posts: 752
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I am so sorry to hear of Lisa's passing. I remember her postings well and she is a loss to us here. Each loss to our site is another reason to keep fighting and informing each other of any and all knowledge we might have of this awful, pitiless disease. God bless to you and Lisa's family.
Cathy
__________________
Cathy
Diagnosed Oct. 2004 3 cm ductal, lumpectomy Nov. 2004
Diagnosed Jan. 2005 tumor in supraclavicular node
Stage 3c, Grade 3, ER/PR+, Her2++
4 AC, 4 Taxol, Radiation, Arimidex, Actonel
Herceptin for 9 months until Muga dropped and heart enlarged
Restarting herceptin weekly after 4 months off
Stopped herceptin after four weekly treatments....score dropped to 41
Finished 6 years Arimidex
May 2015 diagnosed with ovarian cancer
Stage 1C
started 6 treatments of carboplatin/taxol
Genetic testing show BRCA1 VUS
Nice! My hair came back really curly. Hope it lasts lol. Well it didn't but I liked it so I'm now a perm lady
29 March 2018 Lung biopsy following chest CT showing tumours in pleura of left lung, waiting for results to the question bc or ovarian
April 20, 2018 BC mets confirmed, ER/PR+ now Her2-
Questions about the possibility of ovarian spread and mets to bones so will be tested and monitored for these.
To begin new drug Palbociclib (Ibrance) along with Letrozole May, 2018.
Genetic testing of ovarian tumour and this new lung met will take months.
To see geneticist to be retested for BRCA this week....still BRCA VUS
CA125 has declined from 359 to 12 as of Aug.23/18
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08-23-2006, 05:49 PM
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#4
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Senior Member
Join Date: Nov 2005
Location: Ireland
Posts: 3,463
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Thank you.I also will be praying for Lisa and her family.I am just so pleased to hear she travelled and put a lot into her last year.My sincere sympathy to all that knew her.
Tricia
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08-23-2006, 06:11 PM
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#5
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Senior Member
Join Date: Sep 2005
Location: Vancouver, Canada
Posts: 329
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Lisa's family and close friends are heading to Hawaii on the 16th (September) to put Lisa's remains to rest (her request). She loved Hawaii and she wanted to be there forever. I'm sure she is there waiting for them.
Yes we need to fight and find a cure for all the Lisas in the world.
Love and hugs,
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08-23-2006, 06:57 PM
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#6
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Senior Member
Join Date: Sep 2005
Location: Grand Rapids, MI
Posts: 1,516
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This is SOOOO sad
my thought and prayers are with her and her family. Take care and God bless.
Rhonda
__________________
Rhonda
Dx 2/1/05, Stage 1, 0 nodes, Grade 3, ER/PR-, HER2+ (3.16 Fish)
2/7/05, Partial Mastectomy
5/18/05 Finished 6 rounds of dose dense TEC (Taxotere, Epirubicin and Cytoxan)
8/1/05 Finished 33 rads
8/18/05 Started Herceptin, every 3 weeks for a year (last one 8/10/06)
2/1/13...8 year Cancerversary and I am "perfect" (at least where cancer is concerned;)
" And in the end, it's not the years in your life that count. It's the life in your years."- Abraham Lincoln
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08-23-2006, 09:25 PM
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#7
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Senior Member
Join Date: Nov 2005
Location: Northern Calif.
Posts: 981
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I am so sorry that bc has claimed another sister. I feel for her family and friends. There must be a cure found soon....
Love and Prayers,
Lexi
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08-23-2006, 09:49 PM
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#8
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Senior Member
Join Date: May 2006
Location: northshore suburb of chicago
Posts: 1,093
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very upsetting
I didn't know Lisa but her death is yet another reminder of just how horrible this disease is and how important it is to find more answers so we can get to a cure. My deepest sympathy to the family and friends of Lisa.
__________________
~Rina~
Dx:3/06 had a lumpectomy April 19, 2006
Her2+ er/pr- Stage I Grade 3 tumor size 1.4 cm, node negative
AC 4 dense doses
34 radiation treatments including booster doses
receiving herceptin every 3 weeks since late August 2006 for 12 months
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08-24-2006, 12:26 PM
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#9
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Senior Member
Join Date: Nov 2004
Location: Misty woods of WA State
Posts: 4,128
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Sad news, but serves as a reminder as to how harsh this disease we share can be. Some of us are not as lucky with successful treatment and it takes its toll.
I think we all are here on this board to take the full measure of what this disease means.
Happily for most we are able to fend it off for a long time, but we will share cyberhugs and tears for those who succumb.
Rest in sunny loving peace, Lisa.
__________________
"When I hear music, I fear no danger. I am invulnerable. I see no foe. I am related to the earliest times, and to the latest." H.D. Thoreau
Live in the moment.
MY STORY SO FAR ~~~~
Found suspicious lump 9/2000
Lumpectomy, then node dissection and port placement
Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR -
Adriamycin 12 weekly, taxotere 4 rounds
36 rads - very little burning
3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum
Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED!
2003 & 2004 no active disease - 3 weekly Herceptin + Zometa
Jan 2005 two mets to brain - Gamma Knife on Jan 18
All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET
Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying
Continue as NED while on Herceptin & quarterly Zometa
Fall-2006 - off Zometa - watching one small brain spot (scar?)
2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava
2008 - Brain and body still NED! Port removed and scans in Dec.
Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011
STILL NED everywhere in Feb 2014 - on wing & prayer
7/14 - Started twice yearly Zometa for my bones
Jan. 2015 checkup still shows NED
2015 Neuropathy in feet - otherwise all OK - still NED.
Same news for 2016 and all of 2017.
Nov of 2017 - had small skin cancer removed from my face. Will have Zometa end of Jan. 2018.
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08-24-2006, 08:03 PM
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#10
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Senior Member
Join Date: Sep 2005
Location: Madison, Connecticut
Posts: 638
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How fortunate we all were to share a bit of Lisa's spirit. I remember Lisa for her upbeat positive spirit and her fighting attitude. She was a bare souled and a strong inspiration for us all. Thank you for your gift Lisa, and Godspeed.
Love Kim from CT
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08-24-2006, 08:24 PM
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#11
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Senior Member
Join Date: Dec 2005
Location: Alexandria, VA
Posts: 1,055
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My sympathies as well. Bev
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08-25-2006, 04:42 AM
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#12
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Senior Member
Join Date: Sep 2005
Location: france
Posts: 1,648
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Very sad news. My heart goes out to her family.
love and big hug
sarah
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08-25-2006, 06:29 AM
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#13
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Senior Member
Join Date: Sep 2005
Location: British Columbia, Canada
Posts: 198
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Thank you Shoreh for letting us know about Lisa, my deepest sympathies for her family.
CRAP!!! WE NEED A CURE!!!!!
Tammy
__________________
Dx'd Dec'01 while 6mos preg. with #4. child (30yrsold)Mastectomy/AC chemo/radiation/ Recur:Mar'04 liver mets: 3 taxol/herceptin /liver resection/3 taxol/herceptin. Cured?
Recur: May'05 spine & Hip. New onc
treatment in Mexico Feb'06-Mar-06
back to Mexico June/July '06
Currently on herceptin/Zometa/Femara-recently added navelbine
Switched to arimidex Nov'06
ovaries removed June '07
ca15-3 in May'06 was 102
ca15-3 summer of '07 holding steady at 23!
ca15-3 slowly rising Dec & Jan 36, 38, 41 and Feb was 36
Feb '08 Liver, lung & Brain scan NED... bones are stable with even a couple spots gone. as compared with '06 scans
May '08 ca 15-3 is 55. Treatment is zometa, vinorelbine, herceptin and aromasin.
No signifcant changes.
Feb'09 Started Xeloda with herceptin..no more hormonals
Feb'09-June'09 tumor markers coming down again from 155 to 84
May'09 blood clots in lungs vena cava filter put in..Heparin shots daily for now.
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08-25-2006, 07:59 AM
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#14
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Senior Member
Join Date: Jul 2005
Location: Ontario, Canada
Posts: 722
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....another one..........my heart goes out to Lisa's family and friends, as they may suffer more than Lisa did.
Al
__________________
Primary care-giver to and advocate for Linda, who passed away April 27, 2006.
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08-25-2006, 09:37 AM
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#15
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Senior Member
Join Date: Sep 2005
Location: Newton, MA
Posts: 951
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My Sympathies to her family and friends!!!
Barbara H.
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