HonCode

Go Back   HER2 Support Group Forums > her2group
Register Gallery FAQ Members List Calendar Search Today's Posts Mark Forums Read

Reply
 
Thread Tools Display Modes
Old 07-15-2005, 05:46 PM   #1
jojo
Guest
 
Posts: n/a
Hey guys,

I would like to see the variety of time lengths that we have been stable at some point(s).

So, here is my answer:

I have been on 3 different hormonals. The first 2 hormonals kept me stable for only 6 months each time. I am currently on Aromasin, and I am into the 7th month so far, as it has been keeping me stable. Please note that my hormonals have been administered AFTER I was done with my first-round chemo. Oh, Herceptin has been coming along the whole time, chemo & hormonals. I have yet to be in remission....
  Reply With Quote
Old 07-15-2005, 07:42 PM   #2
al from canada
Guest
 
Posts: n/a
JoJo,
Would you define "stable" as no disease progression with or without chemo support?
Al
  Reply With Quote
Old 07-15-2005, 09:53 PM   #3
jojo
Guest
 
Posts: n/a
Sorry, Al, for not being clear. Yes, I would define stable, like what you just said.
  Reply With Quote
Old 07-16-2005, 12:39 AM   #4
al from canada
Guest
 
Posts: n/a
Thanks for the clarification JoJo,

Linda was diagnosed Oct 31, 2003. Her tumor was so large we opted for down-sizing the tumor with AC & T and then surgery.

Her liver mets were first seen as 2 small lesions 2 weeks into her AC treatment. About !/2 way through her Taxol (2 months), a third spot showed-up but it was also dismissed as "imaging variations".

Linda hd a lumpectomy 4 weeks after chemo stopped, clear margins, and started rads shortly after that. After her third rad session she got so sick I took her to the hospital. The result: 75% - 80% of her liver was cancerous and he gave her 2 weeks to live if she didn't respond to the chemo asap.

The next day she jaundiced, 4 weeks later she was in the hospital with severe sepsis in her (surgery) breast and was as yellow as a post-it note.

Her disease has actually been stable since July 2004, in fact her blood counts last week, (that includes CBC and total blood chemistry), were the best they've been in over one year. She is currently on herceptin + xeloda.

She was stable on herceptin + navelbine for 9 months but in order to qualify for the U of Washington vaccine trial, she had to reduce her tumor load. The navelbine stopped the cancer but regression was limited to maybe 5%. We are mor optimistic this time around.

That's a long story short.

Regards,
Al
  Reply With Quote
Old 07-16-2005, 05:01 AM   #5
pattyz
Guest
 
Posts: n/a
Jojo,
I've been 'stable'/NED in body (not brain) for 2 years 7 mos after tx of two months with Navelbine/Herceptin.

No treatments since then, Nov. '02.

Mets to mediastinal node/s confirmed with surgical biopsy of aortic window node - 'spot' on lung - 'spot' on pelvis.

pattyz

p.s. hugs to you xoxox
  Reply With Quote
Old 07-16-2005, 10:01 AM   #6
joy
Guest
 
Posts: n/a
Hi Jojo, I was stable on femara and herceptin for 14 months and then on Aromasin and herceptinf for about 5 months. Now i have regression on a high hormone level approach with herceptin, but that has been just since March ish.
Love, Joy
  Reply With Quote
Old 07-17-2005, 01:32 PM   #7
Darla
Guest
 
Posts: n/a
Hi JoJo - After being on Taxotere and Herceptin weekly for a year because of a recurrence in my breast with mets to the liver, I've been NED since October, 2001. I continue to get Herceptin every 3 weeks and PET Scans every 6-8 months.
  Reply With Quote
Old 07-17-2005, 07:02 PM   #8
eric
Guest
 
Posts: n/a
Hi Jojo, my wife Caryn has been NED since January '05 after mets found in liver and lungs July '04. Since January she has been on herceptin and just had her 1st vaccine in Seattle.

Warmest regards,
Eric
  Reply With Quote
Reply

Thread Tools
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off

Forum Jump


All times are GMT -7. The time now is 03:15 AM.


Powered by vBulletin® Version 3.8.7
Copyright ©2000 - 2025, vBulletin Solutions, Inc.
Copyright HER2 Support Group 2007 - 2021
free webpage hit counter