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Old 09-25-2011, 02:02 PM   #1
Kellennea
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upcoming movie on Lifetime

Here's the link to the trailer... gonna need a whole box of tissue for this one!

http://youtu.be/J_ZBaLpNOUY
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10/01/10 - Dx at age 44. Found lump after miscarrying & was told it was "probably a clogged milk duct" not so much:
stage II - invasive ductal carcinoma ER/PR+ HER2+
10/01/10 - BRCA test - Negative
11/3/10 -2.5cm tumor removed via lumpectomy, clear margins. sentinal node biopsy - nodes clear!
12/2/10 - port placement
12/2/10 to 3/17/11 - 6 rounds of taxotere, carboplatin & herceptin every 3rd week.
04/20/11 - 6/6/11 - 33 rounds of radiation
4/6/11 to 11/2/11 - 11 additional rounds of herceptin every 3rd week
7/15/11 - port removal
7/5/11 started my 5 year journey on Tamoxifen
9/4/11 -1 yr Chest MRI - CLEAN!!!!
9/5/12 -2 yr Chest MRI - CLEAN!!!!
8/29/12 - Started spotting after being in chemopause 1.5 years. Ultra sound detected 6cm ovary mass & very thick lining. YIKES! Taken off Tamoxifen
9/6/12 - Full abdominal hysterectomy. Pathology report came back clean... thank you baby Jesus!!
9/28/12 - Started Anastrozole
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Old 09-25-2011, 03:02 PM   #2
CoolBreeze
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Re: upcoming movie on Lifetime

Ugh. I'm living it, why would I want to watch that?
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http://butdoctorihatepink.com

08/17/09 Dx'd.
Multifocal/multicentric IDC, largest 3.4 cm, associated ADH, LCIS, DCIS
HER2+ ER+/PR- Grade 3, Node Negative

10/20/2009: Right mastectomy, reconstruction with TE
12/02/2009: Six rounds TCH, switched to Taxol halfway through due to neuropathy
03/31/2010: Finished chemo
05/01/2010: Began tamoxifen, the worst drug ever
11/18/2010: Reconstruction completed
12/02/2010: Finished herceptin
05/21/2011: Liver Mets. Quit Tamoxifen
06/22/2011: Navelbine/Zometa/Herceptin
10/03/2011: Liver Resection, left lobe. Microwave ablation, right lobe - going for cure!
11/26/2011: C-Diff Superbug Infection, "worst case doctor had seen in 20 years"
03/28/2012: Progression in ablated section of the liver - no more cure. Started Abraxane, continue herceptin/zometa
10/10/2012: Progression continues, started Halaven, along with herceptin and zometa.
01/15/2013: Progression continues, started Gemzar and Perjeta, an unusual combo, continuing with herceptin and zometa
03/13/2013: Quit Gemzar, body just won't handle it. Staying on herceptin, zometa and perjeta.
04/03/2013: CT shows 50% regression in tumor, so am starting back on Gemzar with dose reduction, staying with perjeta/herceptin/zometa. Can't argue with success!
05/09/2013: Discussing SBRT with Radiology due to inability of bone marrow to recover from chemo.
06/07/2013: Fiducial placement for SBRT
07/03/2013: Chemo discontinued, on Perjeta, Herceptin and Zometa alone
07/25/2013: SBRT (gamma knife) begins
08/01/2013: SBRT completed
08/15/2013: STABLE! continuing with Perjeta, Herceptin, Zometa
06/18/2014: ***** NED!!!!***** continuing with Perjeta, Herceptin, Zometa
01/29/2014: Still NED. continuing with Perjeta, Herceptin. Zometa lowered to every 3 months instead of monthly.
11/08/2015: Progression throughout abdomen and lungs. Started TDM-1, aka Kadcyla. Other meds discontinued. Remission was nice while it lasted.

5/27/18: Stable. Kadcyla put me right back in the barn. I have two teeny spots on my lungs that are metabolically inactive, and liver is clean.

I’m beating this MFer. I was 51 when this started and had two kids, 22 and 12. Now I’m 60. My oldest got married and trying to start s family. My youngesg graduates from Caltech this June. My stepdaughter gave me grandkids. Life is fantastic.
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Old 09-25-2011, 03:33 PM   #3
Kellennea
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Re: upcoming movie on Lifetime

I lived it as well. However, I am interested in how these directors are "getting the word out" to educate woman & men.
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10/01/10 - Dx at age 44. Found lump after miscarrying & was told it was "probably a clogged milk duct" not so much:
stage II - invasive ductal carcinoma ER/PR+ HER2+
10/01/10 - BRCA test - Negative
11/3/10 -2.5cm tumor removed via lumpectomy, clear margins. sentinal node biopsy - nodes clear!
12/2/10 - port placement
12/2/10 to 3/17/11 - 6 rounds of taxotere, carboplatin & herceptin every 3rd week.
04/20/11 - 6/6/11 - 33 rounds of radiation
4/6/11 to 11/2/11 - 11 additional rounds of herceptin every 3rd week
7/15/11 - port removal
7/5/11 started my 5 year journey on Tamoxifen
9/4/11 -1 yr Chest MRI - CLEAN!!!!
9/5/12 -2 yr Chest MRI - CLEAN!!!!
8/29/12 - Started spotting after being in chemopause 1.5 years. Ultra sound detected 6cm ovary mass & very thick lining. YIKES! Taken off Tamoxifen
9/6/12 - Full abdominal hysterectomy. Pathology report came back clean... thank you baby Jesus!!
9/28/12 - Started Anastrozole
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Old 09-25-2011, 04:09 PM   #4
jml
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Re: upcoming movie on Lifetime

I'd like to know when they're going to make a movie about The Stage IV patient, 100+ chemos, Bald 3x's, 7 weeks radiation, novalis, liver resection,RFA, mastectomy, reconstruction, 1 nipple, 10 inch abdominal scar, that's been living in 3 month increments for 9+years that's NOT a melodramatic, inorganic depiction of what it's like to LIVE WITH this disease, SURVIVE WITH this disease and still enjoy a full, happy, however complicated existence?

Sorry to be so grouchy about it and I know I shouldn't judge a book by it's cover...
Truly hope it's better than I fear it will be!

Keep the Faith~

Jml

Last edited by jml; 09-25-2011 at 04:10 PM.. Reason: typos
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Old 09-25-2011, 04:42 PM   #5
ElaineM
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Wink Re: upcoming movie on Lifetime

Thanks for the link. Everyone here has lived it or is living it.
I always thought that the Lifetime original movie "Living Proof" staring Harry Conick Jr. should be required watching for every her2 positive breast cancer patient who is offered Herceptin.
"Living Proof" shows how much work went into the development and FDA approval of Herceptin. Dr. Dennis Slamon is credited with the development of Herceptin. It took him many, many years to develop it and get it approved by the FDA.
I hope Lifetime will show it again this October. If not it can be purchased online.
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12 years and counting
http://her2support.org/vbulletin/showthread.php?t=48247
Lucky 13 !! I hope so !!!!!!
http://her2support.org/vbulletin/showthread.php?t=52807
14 Year Survivor
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Old 09-25-2011, 05:46 PM   #6
Pray
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Re: upcoming movie on Lifetime

Kellenea, Thanks for the post. I'm looking forward to that movie because I'm still looking for ways just to live this nightmare day to day and to see how other woman do it. (Even if it is a movie.) The fact is we need these movies to help move anybody so they share it with others so we can find that Cue. I'm sure I will cry my eyes out. after two years of this I have never met a woman who was a stage 3. I know at least 40 women now that have this horrible desease they are all stage 0, 1, and very few twos. It ticks me off every day still that mine should have been caught earlier!

Jml, I can not imagine how hard it has been for you! Coming to this site and seeing how you fight and live with such an awesome attitude it frightens me I don't have it in me to fight that hard. In the same token it is so important for me and others here to see you sound off it is just to hard to ride that high continually with out sounding off! Thank you so much for your post! Gods blessings to you. Please know I am praying for you as I do for all the amazing people on this site.
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dx 11/12/09 IDCI
Stage 3a
ER 98% PR 80%
Her2 +3
4/12 nodes
6 rounds TCH
Herceptin 12 months 3weeks
Rad. 30 tx
Tamoxifin 6 months stopped
Arimedex stopped 9/12 (side effects)
Aromasin 10/12
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Old 09-25-2011, 05:52 PM   #7
Jean
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Re: upcoming movie on Lifetime

I am begining to believe that unless you have been dx., or have a loved one who has been dx with bc or any other cancer.....many people just don't get it.
Sure they feel sorry when they hear so and so has been dx. and they will watch these movies etc. but unless it hits your heart or home....many do not understand the life changing events that take place for those of us who are dx. and those who battle the monster each day.
How often have we heard "well you are lucky you caught it early" or "you are lucky you are NED"...they just don't understand how the person who has been dx. that their life is never the same and a new normal takes over. For those who are NED after cancer their outlook is greatly changed and the stuff that most people worry about or the drama that runs their life - we know is not important. But getting the word out is vital...but until it hits home....well....then the bells begin to ring.

jean
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Stage 1, Grade 1, 3/30/05
Lumpectomy 4/15/05 - 6MM IDC
Node Neg. (Sentinel node)
ER+ 90% / PR-, Her2+++ by FISH
Ki-67 40%
Arimidex 5/05
Radiation 32 trt, 5/30/05
Oncotype DX test 4/17/06, 31% high risk
TOPO 11 neg. 4/06
Stopped Arimidex 5/06
TCH 5/06, 6 treatments
Herceptin 5/06 - for 1 yr.
9/06 Completed chemo
Started Femara Sept. 2006
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Old 09-25-2011, 06:24 PM   #8
lkc Gumby
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Re: upcoming movie on Lifetime

This is for you dearest Pray: I am over 6 yrs out from a stage III C DX. and am well and living large.'Check out :breast cancer.org ; there is a stage III forum, where you'll find many many of us!
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Dxed Stage IIIC May 05, 12 pos nodes
er/pr -neg,Her -pos
LVI
Right partial mast & partial axillary dissection-June14,2005
Right modified mast-no clear margins- June 30, 2005
DD AC x4
Taxotere X4 with Herceptin
Rads x 35( 5 fields )
Left prophylactive mast( atypia & hyperplasia found ),
put on Tamoxifen x 1 yr; D/ced due to endometrial thickening
bilateral recon (saline implants)May 06
Nipple recon July 06
metformin 2010
removal of implants due to severe encapsulation, insertion of gummies 2013
Reclast Q yr
NED!!!
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Old 09-25-2011, 07:20 PM   #9
Debbie L.
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Re: upcoming movie on Lifetime

JML: where's that "like" button, for your post? I hear you. You are NOT "just grouchy".

I, too, hope that this has more reality than I expect. But I've come to expect little, in terms of reality, from the October breast-cancer-industry extravaganzas.

Debbie Laxague


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Old 09-25-2011, 08:05 PM   #10
Pray
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Re: upcoming movie on Lifetime

Thank you so much Linda for your post! I will check out cancer.org s forum out! I'm not so great at the internet. It was pure luck I stumbled onto this site! It does my heart good to see you doing so well! (and my mind) Along with all our sisters and brothers on this site fighting so hard, Ned, cured and last but not least living happily years and years out!

Thanks again!

Your friend,

Nanc
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dx 11/12/09 IDCI
Stage 3a
ER 98% PR 80%
Her2 +3
4/12 nodes
6 rounds TCH
Herceptin 12 months 3weeks
Rad. 30 tx
Tamoxifin 6 months stopped
Arimedex stopped 9/12 (side effects)
Aromasin 10/12
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Old 09-26-2011, 07:17 PM   #11
jml
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Re: upcoming movie on Lifetime

I know the development of this "Five" project comes from a good place, but all I know is when I was 33yo, being dx'd with Stage IV disease from primary diagnosis, being told there was no cure for me, that I would never be off chemo long enough to sustain a pregnancy, and then failing my 1st chemo combo, there were NO positive survivor role models for me to look to for hope & optimism. People in all those movie's of the week were either cured or died bald - nothing in between.
That is until I found this site.
And my world opened up with so many incredibly knowledgable, compassionate, fiercly fighting survivors that were LIVING, STRIVING and THRIVING.

Pray - thank you for your kind words. and yes, you could definitely handle whatever obstacle is placed in front of you. you just keep fighting hard and keep the faith~

Jean- i agree. if you haven't lived this disease there's no way to describe how to get through it, and in blissful ignorance people say things that are meant to be supportive, but just come out all wrong. I once had a woman/acquaintace from the gym that learned about my diagnosis, say to me that I "must not have the BAD kind..."

Debbie L - I know! It seems blasphemous to say that I dread all the October Pink Ribbon hooplah, but I do. So maybe I'm not grouchy, but I'm definitely a salty old 9+yr Stage IV'er!

Keep the Faith~
Jml
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