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Old 10-10-2008, 07:35 PM   #1
Sherryg683
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Posts: 1,014
Surgery on arm of lumectomy side?

Has anyone ever had any sort of surgery or procedure done on arm that's the same side of lumpectomy or mastectomy. I am having terrible pain in my wrist and right arm (surgery side) and I had one doctor say it was probably corpal tunnel syndrom . He said I may need surgery in my wrist which would be a very simple incision to relieve pressure. I am worried about lymphodema and thought that any sort of cutting or surgery would be out of the question. But now I am considering because my arm and wrist is radiating so badly. Anyone ever had anything done and it come out OK with no problems..sherryg683
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Sherry

Diagnosed: December , 2005 at age 44
13+ positive lymph nodes
Stage IV , Her2+, 2 small mets to lungsChemo Started: Jan, 2006
4 months Taxotere, Xeloda, Hercepin
NED since April 2006!!
36 Rads to follow with weekly Herceptin indefinately
8 years NED now
Scans every year

Life is not about avoiding the thunderstorms, it's about learning to dance in the rain!
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Old 10-10-2008, 08:11 PM   #2
Adriana Mangus
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Join Date: May 2006
Location: California
Posts: 668
Lymphodema

Hi Sherry:

I have had problems ever since I had the Lymph nodes removal in 1994.

I have asked my doctor about surgery or injections on the arm that I got the surgery and he's always expressed concerns about using it for anything; even to draw blood.

I would not do surgery if I were you. The only advice I can give you, is to first try accupuncture.

It has worked for me for pain control. I'm right handed and have experienced pain for the last 15 years due to clerical work I have done for the last 32 years.

Other suggestion is to ask your oncologist or surgeon before making a decision.

Good luck. Please keep us posted.

P.S. What a great picture!

Love,
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1994 - rt brst, .lump, underarm node dissection,chemo+rad 1.2 cms, Grade 3.
28 nodes neg
Er,Pr, Positive HER2 status unknown
2003- Recur to rt lung.July 16 ( B-Day!)
Her2+++ Er,Pr, Negative
2003 - Aug04--Navelbine + Herceptin
2004- 2007--
NED - Herceptin, only
2007 Feb-April Xeloda added to hereceptin
2007-May Back on Navelbine+Herceptin
2008-Feb-Mar 15 Ses Rad to Rt. Lung
2008- Oc 17 Add Tykerb to Herceptin
2009- June-- Discont Tykerb
2009 July 7--Current Taxol + Herceptin
2009 Dec--Discontinued treatment due to progression. Looking into cyberknife.
2010-Aug Accepted to TDM1, no SE, except liver count went up.
2010-2011 September got kicked out of the trial, due to a small spot found on lung.
2011- 2012 September thru early 2013 on Herceptin
2013- March Bone density shows small spot on 5th rib.
2013 - April 4th appt with onc. will post after discussing course of treatment.
2013-March-April Cyber knife to brain and radiation to rib. Chest --base line before chemo-CT-Scan stable for lung issue. CA2729 Normal.
2013 April Herceptin- TDMI
2013 Sept Herceptin + Perjeta . CA2729 within normal range. Brain and Pet scans October 31st. will post results.
2013 October Brain MRI- mixed response. Will see Onc/rad on Halloween.
2013 October/November Brain-MRI nothing new. Repeat MRI next year in May.

2013 December Continue Herceptin and Perjeta. Stable at the moment.
2014 February Brain MRI -clear!
2014 January Added Taxotere to Perjeta+Herceptin.
2014 March Stopped chemo-chest ct-scan next.

2014- March Scans shows tumor's larger, CA2729 higher. Discontinue Herceptin.
2014 April Perjeta+ Halaven
2014 April CA2729 went down 60 points after one cycle. Cough does not want to go away.
2014 June Continue on Perjeta + Halaven-- no more cough. Stable
2014 June Back on Herceptin + abraxane
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