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06-27-2008, 06:52 AM
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#21
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Member
Join Date: Apr 2008
Location: Ohio
Posts: 5
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Will be 3 years for me also in Nov. Yeah!
__________________
Diagnosed 11/05 - stage 1, Grade 3 tumor, left breast. lumpectomy, no node envolvment. Her2 +, er/pr-, chemo, radiaton
1 year herceptin - finished 4/07.
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06-27-2008, 08:18 AM
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#22
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Senior Member
Join Date: Feb 2008
Location: Newnan, Georgia
Posts: 80
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Great thread to start! 2 years, 3 months NED. I remember when I was first diagnosed I searched frantically for anyone that was NED after a diagnosis like mine. It helped so much to encourage me. I hope this thread will help many others!! May God's peace and comfort be with all of us.
__________________
Nancy
Diagnosed 4/06, age 45
IDC, 3.5 cm, 4/7 positive nodes
Stage IIB
Her2++, ER & PR++
Mastectomy, 4 AC, 4 Taxol & Herception for one year
Radiation
Ovaries out 4/07
Currently taking Arimidex and Zometa every 6 months
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06-27-2008, 01:12 PM
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#23
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Senior Member
Join Date: Feb 2006
Location: Watkinsville, Georgia
Posts: 357
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I love sharing happy news...
this month was my 5 year NED!
I had 10 positive lymphnodes with many of them matted together....
There is lots of hope out there!
Hugs ~ Ruth
__________________
[/SIGPIC]~~~~~~~~~~~~~~~~~~~~~~~~~~~
Diagnosed 6/03 nursing daughter
Dose dense A/C 4x
Modified rad mast 8/03
IDC; 3 cm; 10+/16 nodes; ER/PR-; Her2+++
Weekly taxol w/Herceptin (off label) 12x's
40 weeks Herceptin
Radiation 33x
Reconstruction w/ implants 05 & 07
NED
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06-27-2008, 01:15 PM
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#24
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Senior Member
Join Date: Aug 2006
Location: Poland Ohio just a little south of Youngstown.
Posts: 473
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I was diagnosed two years ago this past May, it will be two years since my surgery this July. Everything is going great! No problems. Praise God!
__________________
Susan
Age: 61
dx: 5/25/06
2 cm/ 0 nodes
Lumpectomy rt breast on 7/26/06
ER/PR- / Her2+++
A/C x 4
finished taxotere 2/07
finished 33 rads
Herceptin finished 12/07/07 Yippee!
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06-27-2008, 02:24 PM
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#25
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Senior Member
Join Date: Nov 2004
Posts: 190
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It's hard to believe that I have been back and forth with breast cancer for 10 years, but here I am. I feel great! Tykerb and Xeloda have brought me back to the land of NED!!!! Read my bc bio below
Kim
__________________
8/98 dx right breast
5/2003 tram flap right breast
8/2004 dx new primary left breast with inflammatory bc
er/pr-, her2neu+++
8/19 taxotere and herceptin
1/15/2005 Navelbine/Herceptin
4/2005 radiation and Herceptin
5/15/2005 Herceptin alone
2/12/2008 skin biopsy positive
2/14/2008 met to sternum, possibly right breast
2/27/08 Start omitarg, herceptin, taxotere trial
3/17/08 Kicked off trial because I started too close to my last herceptin
3/19 start tykerb xeloda
Right breast confirmed met
5/15/08 skin mets gone, no hypermetabolic activity in breast, sternum healing
8/24/08 scans still look good. sternum still active with scarring. No evidence of progression
10/08 Progression in sternum
12/08 Start TDM1 trial
1/09 Scans show stable
12/09 1 year on TDM1 still stable
10/10 progression in chest and liver
11/10 false positive of liver mets; tykerb and herceptin
4/11 Tykerb/Herceptin/Xgeva
4/11 Rads to Sternum
5/12/12 NED Herceptin/Zometa
3/16/19 still NED Herceptin/Zometa very 6months
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06-27-2008, 03:47 PM
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#26
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Senior Member
Join Date: May 2006
Location: Haarlem, the Netherlands
Posts: 835
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Great idea! I'm four and a half years, yes that's 4,5 years, out from diagnosis. I didn't get Herceptin, because it wasn't available then for early stage disease, and I'm doing fine. Dancing with NED!
I just read on a Dutch site that in my country 85% of those diagnosed with Breastcancer survive at least 5 years. For early stage the odds are even better. When I was diagnosed the number on the same site was 80% survival. In just 4 years the stats have improved that much!
Love
Jacqueline
__________________
Diagnosed age 44, January 2004, 0.7 cm IDC & DCIS. Stage 1, grade 3, ER/PR pos. HER2 pos. clear margins, no nodes. SNB. 35 rads. On Zoladex and Armidex since Dec. 2004. Stopped Zoladex/Arimidex sept 2009 Still taking mistletoe shots (CAM therapy) Doing fine.
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06-27-2008, 06:42 PM
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#27
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Senior Member
Join Date: Sep 2006
Location: Marengo, IL
Posts: 518
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Just wanted to bump this to the top and say thank you to all who have responded.
You have helped me and so many others regain that deep down good feeling. Lets keep the posts coming!
Thanks again!
Donna
__________________
Donna
Crystal Lake, IL
Diagnosed 8/4/06 at age 54
Lumpectomy 8/30/06
Stage llA, grade 3, ER/PR-, Her2++
1.7 cm tumor, 1+ lymph node out of 9
Completed 4 A/C, & 4 Taxol with Herceptin
36 rads completed 5/16/07
Mammograms, 7/07 clear
fractured ribs in radiated area 10/07
Finished Herceptin 12/27/07
Mammogram,CT,tumor markers 1/08 - small lung nodules in radiated area, repeated tests 3/08 stable
Mammogram,CT ,tumor markers 6/08 stable
NED 2 years!!
3 years !!!
4years!!!!
4 years, 10 months and 8 day NED, calling it 5 years!!!
Official 5 years 8/30/2011
8/31/ 2012 - 6 years!!!!!!
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06-27-2008, 07:50 PM
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#28
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Senior Member
Join Date: Sep 2005
Location: Stockton, NJ
Posts: 4,179
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I am almost 4 years out. When I was diagnosed, I never thought I'd see my daughter's graduate. Since then, my oldest (who started college right when I was diagnosed) has graduated college. My middle daughter graduated high school and started college. My youngest who was starting 8th grade will be a senior in high school.
I started my research on bc when I felt my lump in August, 2004. When I had my lumpectomy, I prayed I was not Her2+ and the odds were with me. But of course that's not what happened. I am a different but better person than I was before. I don't take no for an answer and I don't say yes as often as I used to.
I clung to the fact that I could survive and I didn't. I live!
Just remember this: bc is frightening but it is compounded by the fact that before you had bc the only women you heard about were the women who did poorly and died. You never heard about the women who did wonderfully and lived.
More live.
__________________
Kind regards
Becky
Found lump via BSE
Diagnosed 8/04 at age 45
1.9cm tumor, ER+PR-, Her2 3+(rt side)
2 micromets to sentinel node
Stage 2A
left 3mm DCIS - low grade ER+PR+Her2 neg
lumpectomies 9/7/04
4DD AC followed by 4 DD taxol
Used Leukine instead of Neulasta
35 rads on right side only
4/05 started Tamoxifen
Started Herceptin 4 months after last Taxol due to
trial results and 2005 ASCO meeting & recommendations
Oophorectomy 8/05
Started Arimidex 9/05
Finished Herceptin (16 months) 9/06
Arimidex Only
Prolia every 6 months for osteopenia
NED 18 years!
Said Christopher Robin to Pooh: "You must remember this: You're braver than you believe and stronger than you seem and smarter than you think"
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06-27-2008, 07:58 PM
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#29
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Senior Member
Join Date: Oct 2005
Location: New Jersey
Posts: 3,154
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Donna you are a genius ....:)
I am now 3 yrs. and 3 months. I can remember clearly
how disturbing the dx. was when I heard Her2, Yikes...
I thought...this is very bad...especially when I found out
that as an early stager I could not have Herceptin.
Well dear sisters new and old never give up...I had
2nd and 3rd opinions and still did my searching..and then I found this site. My second home, well really my first home for a long time, for when I first found the site I could not read enough, I found others who were
thriving and living life -
God Bless All
Huge Huge Hugs to my Dear Sisters
Jean
__________________
Stage 1, Grade 1, 3/30/05
Lumpectomy 4/15/05 - 6MM IDC
Node Neg. (Sentinel node)
ER+ 90% / PR-, Her2+++ by FISH
Ki-67 40%
Arimidex 5/05
Radiation 32 trt, 5/30/05
Oncotype DX test 4/17/06, 31% high risk
TOPO 11 neg. 4/06
Stopped Arimidex 5/06
TCH 5/06, 6 treatments
Herceptin 5/06 - for 1 yr.
9/06 Completed chemo
Started Femara Sept. 2006
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06-27-2008, 11:33 PM
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#30
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Member
Join Date: Jun 2006
Posts: 23
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18 positive nodes - now 3.8 years NED . Great to be here ! Romo9
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06-28-2008, 03:11 PM
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#31
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Senior Member
Join Date: Oct 2006
Location: Louisville KY
Naples FL
Posts: 665
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Two year anniversary this month. Every day is a gift
and life has never been sweeter. My bones ache from
Arimidex but I just keep moving. This site has been
a wonderful, informative, happy, and yes sometime
sad place but everyones support has been a lifeline.
With gratitude
patb
__________________
patb
Diagnosed June, 06, Stage I, Grade3, ER+PR- Her2positive, No Nodes. A/C X 4. Radiation 33 with boost, Herceptin every two weeks until Nov.
07, Arimedex for 5 years. Mugas and Echo and chest xRay. Bone scan of whole Body, and Back of Brain and spine MRI.
CT scan of Lungs every six months
due to two small places. December
2009, bone scan due to bone pain.
Follow up test in 2010.
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06-28-2008, 05:26 PM
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#32
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Senior Member
Join Date: Mar 2007
Location: Hilo, Hawaii
Posts: 1,867
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I am 1.5 yrs NED!
Donna, this is a great idea for a thread that you started here!
Thank you!
__________________
*** MARYANNE *** aka HARRIECANARIE
1993: right side DCIS, lumpectomy, rads
1999: left side DCIS, lumpectomy, rads, tamoxifen
2006:
BRCA 2 positive
Stage I, invasive DCIS (6mm x 5mm)
Grade: intermediate
sentinal node biopsy: neg
HER2/neu amplified 4.7
ER+/PR+
TOPO II neg
Oncotype dx 20
Bilat mastectomy with DIEP flap reconstruction
oophorectomy
2007:
6 cycles TCH (taxotere, carboplatin, herceptin)
finished 1 yr herceptin 05/07
Arimidex, stopped after almost 1 yr
Femara
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06-28-2008, 08:13 PM
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#33
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Guest
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3 years. Woo hoo! I guess you never know but I'm beginning to feel like I'm done with it. Hoping it was a fluke convergence of hormones and genetic defects. Bev
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06-29-2008, 04:26 AM
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#34
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Senior Member
Join Date: Jan 2007
Location: Thornhill, Ontario
Canada
Posts: 2,320
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Great thread Donna!!
I was dx in Oct. 06, by accident - I had a breast reduction and my PS found my 1.7 cm. tumour. This was 3 months after a mammogram and breast u/s showing nothing. I was devastated - no BC in my family, and my DH had just suffered a brain aneurysm in Jan. 2006. (he's fine, we were very, very lucky).
Needless to say, when I started reading and investigating about Her2+, alot of the news out there was not exactly + (excuse the pun). But in Dec. 2006 I believe the Hera trials and others came out with the wonderful news about Herceptin - in Canada Herceptin was already available to early stagers, and my onc. was much more positive.
In Jan. 2007 studies were published relating that pre-menopausal, dense breasted women were 6x more likely to get BC. (I fell into both those categories). This has been my mantra - I tell everyone I meet to get checked, and to demand breast MRIs if there is any question of breast density on their mammos and u/s.
Well, I guess I am 18 months out from my MRM, looking forward to that 2 year cancerversary in Dec. 2008.
Living each day to the fullest - The Dh and I celebrated out 25th wedding anniversary in Oct. 2007 with a big catered party at home, my youngest daughter graduated high school in June 2007, and this month, June 2008, my older DD graduated university. I savour every day, and try not to put things on hold anymore.
all the best
caya
__________________
ER90%+/PR 50%+/HER 2+
1.7 cm and 1.0 cm.
Stage 1, grade 2, Node Negative (16 nodes tested)
MRM Dec.18/06
3 x FEC, 3 x Taxotere
Herceptin - every 3 weeks for a year, finished May 8/08
Tamoxifen - 2 1/2 years
Femara - Jan. 1, 2010 - July 18, 2012
BRCA1/BRCA2 Negative
Dignosed 10/16/06, age 48 , premenopausal
Mild lymphedema diagnosed June 2009 - breast surgeon and lymph. therapist think it's completely reversible - hope so.
Reclast infusion January 2012
Oopherectomy October 2013
15 Years NED!!
Last edited by caya; 06-29-2008 at 04:29 AM..
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06-29-2008, 12:06 PM
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#35
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Senior Member
Join Date: Feb 2006
Posts: 437
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I celebrated 3 yrs in May 08!
God is good.
__________________
Linda
Dxed Stage IIIC May 05, 12 pos nodes
er/pr -neg,Her -pos
LVI
Right partial mast & partial axillary dissection-June14,2005
Right modified mast-no clear margins- June 30, 2005
DD AC x4
Taxotere X4 with Herceptin
Rads x 35( 5 fields )
Left prophylactive mast( atypia & hyperplasia found ),
put on Tamoxifen x 1 yr; D/ced due to endometrial thickening
bilateral recon (saline implants)May 06
Nipple recon July 06
metformin 2010
removal of implants due to severe encapsulation, insertion of gummies 2013
Reclast Q yr
NED!!!
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06-29-2008, 02:58 PM
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#36
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Senior Member
Join Date: Feb 2007
Location: Cordoba, Mexico
Posts: 672
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I celebrate my two-year anniversary tomorrow and plan to keep counting! God bless us all!
__________________
Dx. June 30th, 2006 at age 43
Lumpectomy rt breast
2.2 cm tumor, 13 nodes all negative
ER-PR+,her2+++
6 FAC
32 Rads
Dx. Lung fibrosis due to radiation
Ended 1 year herceptin in March, 2008
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06-29-2008, 04:15 PM
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#37
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Senior Member
Join Date: Jun 2006
Location: San Antonio, TX
Posts: 2,357
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Congrats Paty on 2 years tomorrow!
Two years and two months ago I had surgery with largest tumor 4.5 and 7 of 9 nodes positive. But here today NED and loving life more than ever. Thanks for the knowledge, support, and love on this site for making the journey so much easier! ma
__________________
MA in TX.
Grateful for each and every day....
Diag. 12/05 at age 60
Stage II, Grade 3, 4.5 cm primary tumor
ER/PR- Her2 +3 strongly positive
Her2 by FISH 7.7 amplified
vascular invasion
Ki67 20% borderline
Jan - March '06 Taxotere/Adriamycin X 3 to try to shrink tumor - it grew
April '06 Rt Modified Radical Mas, 7 of 9 nodes positive
April - Aug. '06 Herceptin/Taxol/Carboplatin X 8 (dose dense)
Sept - Dec. '06 Navelbine/Herceptin x 8 (dose dense)
Radiation & Herceptin Jan. 22 - March 1, 2007
Finished Herceptin Dec. 10 '08! One extra year.
Port removed August, 2012.
8 1/2 years since diagnosis! 5 1/2 Years NED!
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06-29-2008, 08:53 PM
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#38
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Senior Member
Join Date: Sep 2005
Location: St. George, UT
Posts: 582
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As I posted earlier, my 6 months checkup this month shows I am also NED. It will be 4 years tomorrow (June 30) that I had the heart attack that led to the discovery of my her2cancer mets. I would never have discovered it otherwise in time. Herceptin saved my life. As many of you know, it has also been 23 years now since my first BC diagnosis in 1985, so I am a long time survivor of BC and also her2. THere is more hope now than there has ever been. Hang in there, fellow warriors! Our prayers for each other are of great value. Hugs, Tricia
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06-29-2008, 11:06 PM
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#39
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Senior Member
Join Date: Mar 2007
Location: Hilo, Hawaii
Posts: 1,867
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Just for the record, I have 2 very good friends here where I live. Both had bc in their early 40s. One was stage 1 and the other was stage 2 with several node involvements. It has been 10 yrs plus for both of these women! They each had chemo but no herceptin since it was not available.
__________________
*** MARYANNE *** aka HARRIECANARIE
1993: right side DCIS, lumpectomy, rads
1999: left side DCIS, lumpectomy, rads, tamoxifen
2006:
BRCA 2 positive
Stage I, invasive DCIS (6mm x 5mm)
Grade: intermediate
sentinal node biopsy: neg
HER2/neu amplified 4.7
ER+/PR+
TOPO II neg
Oncotype dx 20
Bilat mastectomy with DIEP flap reconstruction
oophorectomy
2007:
6 cycles TCH (taxotere, carboplatin, herceptin)
finished 1 yr herceptin 05/07
Arimidex, stopped after almost 1 yr
Femara
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07-02-2008, 01:15 PM
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#40
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Senior Member
Join Date: Jun 2007
Location: RHODE ISLAND
(Ed getting me a latte on 2nd Cancerversary Cruise 2008)
'BELIEVE': To accept as true or real, To have faith in, To presume
ALWAYS BELIEVE
Posts: 3,000
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Hey....
.....doing the bump thing>>Believe51
__________________
9/7/06Husband 50yrs=StageIV IBC/HER2+,BoneMets10/06TaxotereX10,'H'1X wk,Zometa,Tamoxifen4/12/07Last Tax5/18/07Pet=Rapid Cell Activity,No Organ Mets,Lytic Lesions,Degeneration,Some Bone Repair5/07ChemoFail6/01/07Pleural Thoracentisis=Effusions,NoMalignantCells6/19/07+7/2/07DFCI
6/25/07BrainMRI=BrainMets,Many<9mm7/10/07WBR/PelvisRad37.5Gx15&Nutritionist8/19/07T/X9/20/07BrainMRI=2<2mm10/6/07Pet=BoneProgression
10/24/07ChemoFail11/9/07A/Cx10,EndTam12/7/07Faslodex12/10/07Muga7512/13/07BlasticLesions1/7/08BrainMRI=Clear4/1/08Pet=BoneImprovement,
NoProgression,Stable4/7/08BrainPerfect5/16/08Last A/C8/26/08BrainMets=10(<9mm)9/10/08Gamma10/30/08Met=5mm12/19/08Gamma5mets5
12/22/08SpinalMets1/14/09SpinalRads2/17/09BrainMRI=NoNewMets4/20/09BoneScan5/14/09Ixempra6/1/09BrainMRI=NumerousMets6/24/09DFCIw/DrBurstein6/26/09Continue
Ixempra/Faslodex/Zometa~TM now lower7/17/09Stop Ixempra By Choice9/21/09HOSPICE10/16/09Earned His Deserved Wings And Halo=37 Month Fight w/Stage 4 IBC, Her2+++,My Hero!!
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