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Old 04-19-2007, 05:59 AM   #1
Mgarr
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Smile Just saying hello

Just wanted you all to know despite not posting, I have been keeping up and continue to pray for each & every one of you. I recently had to have a total hip replacement after much pain & numerous tests. The good news is that everything has worked out well and I am in physical therapy and rebuilding muscles . The bad news is I now suffer from lymphadema which I did not have after surgery or during treatment. I have read some good advice and hope to purchase the Lebedmethod DVD.

Take Care.

Mary
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Mary


Diagnosed 11/04 @39yrs. young
Stage IIB
2.5 cm, ER/PR- Her+++, grade 3
Partial Mast., 1/3 pos. node
1/05 full node dissection
4 A/C 4 Taxol DD, Herceptin 1 yr.
30X rads.
BRCA Negative
NED

Hope is the thing with feathers
That perches in the soul,
And sings the tune without the words,
And never stops at all -Emily Dickinson

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Old 04-19-2007, 07:00 AM   #2
rinaina
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So sorry to hear about your hip replacement but you will probably do very well with it and it will get rid of the horrible pain you were having. What a shame...to make it through surgery, treatment and all and now with this most recent surgery, develop lymphodema. This is definitely the place to come to for good advice. I wish you a continued positive recovery.
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~Rina~
Dx:3/06 had a lumpectomy April 19, 2006
Her2+ er/pr- Stage I Grade 3 tumor size 1.4 cm, node negative
AC 4 dense doses
34 radiation treatments including booster doses
receiving herceptin every 3 weeks since late August 2006 for 12 months
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Old 04-19-2007, 08:01 AM   #3
lexigirl
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Mary,

I am sorry that you have developed lymphadema, but happy that your hip replacement was succesfull. That's great news!

Hugs and Prayers,
Lexi
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Old 04-19-2007, 08:18 AM   #4
Jeanette
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This is off the subject, but has anybody heard from Madadbois, don't know if thats how you spellit.
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Old 04-19-2007, 08:21 AM   #5
Shell
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Mary-


good luck with the lymphadema - i had a little minor swelling start in my chest area, and i went to a specialized therapist and everything resolved. but even if it doesn't resolve, physical therapy by someone qualified may be helpful.

regards,
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Shell

init diag 3/17/03-stage IIIC
ER-/PR-/HER2+++
CET x4 neo-adjuvant
lump & SNB 8/03
CET x2
radiation and herceptin/navelbine 11-03-1/04
1st reoccur to lymph nodes 8/04
complete axillary dissection 12/04
herceptin/taxotere til progression (lungs) 3/05
xeloda w/out lapatinib trial 6/05
lapatinib/tykerb added 4/06
ended trial 8/06 due to progression
doxil / avastin 11/06-12/06 - wasn't working
navelbine/herceptin/avastin 12/06/3/07 - progression
gemzar/carboplatin/tykerb 4/07
mri shows extensive mets to bone in pelvic area 6/07
switched to abraxane (3 on/1 off) + tykerb 6/07
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Old 04-19-2007, 11:50 AM   #6
tousled1
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Mary,

Glad your surgery went well but so sorry to hear that you have developed lymphedema. I too suffer from it and I have the "Lebed Method" dvd which really helps with the lymphedema. Also my local rec center has a Lebed Method Class which I go to every Monday. Best of luck to you.
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Kate
Stage IIIC Diagnosed Oct 25, 2005 (age 58)
ER/PR-, HER2+++, grade 3, Ploidy/DNA index: Aneuploid/1.61, S-phase: 24.2%
Neoadjunct chemo: 4 A/C; 4 Taxatore
Bilateral mastectomy June 8, 2006
14 of 26 nodes positive
Herceptin June 22, 2006 - April 20, 2007
Radiation (X35) July 24-September 11, 2006
BRCA1/BRCA2 negative
Stage IV lung mets July 13, 2007 - TCH
Single brain met - August 6, 2007 -CyberKnife
Oct 2007 - clear brain MRI and lung mets shrinking.
March 2008 lung met progression, brain still clear - begin Tykerb/Xeloda/Ixempra
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Old 04-19-2007, 04:50 PM   #7
LAURIE
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Thanks to Tousled I also got the Lebed Method DVD. I do a weird combo of the exercises from the DVD, some Manual Lymph Drainage all while walking my 30-45 minutes on the tread mill. It's a lot to do all at one time but it works out okay for me. I have not seen a reduction of my Lymph but I am in the crucial time of radiation, so I don't expect great results right now. My surgeon yesterday recommended the Lympha Press. Has anyone had success with it?


You will really enjoy the Lebed Method, it's simple and all the people on the DVD seem so real.
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Laurie
Diagonsed 8/10/06 (found own lump)at 35
Her 2 +++, er-/pr-
4 A/C 8-29-06 to 11-06
Lumpectomy, node dissection- 11/30/06
Pathology report stage IIIC
1 tumor 3 cm
10 of 15 nodes +
12 Taxol 12/18/06-03/06/07
Herceptin 12/18/06- 12/11/2007 done!!! yeah!!!
33 rads started 3/22/07, done!! yeah!! 5/07/07
Lymphedema diagonsed 2/1/07
BRCA1/BRCA2 negative
port out 1/10/08
pregnant after 6 yeas of trying- due mid feb.
Ryder David Kessel Hunter born feb.6th 2009

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Old 04-21-2007, 07:00 AM   #8
Mgarr
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Thanks to all of you. I am currently in therapy for my hip I mentioned it to my PT this week and during pool therapy she added some arm movements for the lymphadema. Will be talking to my onc. soon and investing in the DVD. Also, praying that getting back into exercising on a regular basis will get the fluids moving for some pain relief.



Mary
__________________
Mary


Diagnosed 11/04 @39yrs. young
Stage IIB
2.5 cm, ER/PR- Her+++, grade 3
Partial Mast., 1/3 pos. node
1/05 full node dissection
4 A/C 4 Taxol DD, Herceptin 1 yr.
30X rads.
BRCA Negative
NED

Hope is the thing with feathers
That perches in the soul,
And sings the tune without the words,
And never stops at all -Emily Dickinson

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